I'm going to get a new hip.
This is a good thing. I've been in incredible pain for the past two years as the cartilage in my hip has disintegrated and the bones have deteriorated. The pain has increased until walking is an Olympic event for me and lying in bed at night brings nothing but misery. Bone scrapes on bone as tiny cysts form and burst, bringing their own form of exquisite sensation.
This is a good thing. The pain will be relieved and there's a good chance I'll be able to walk without limping for the first time in a few years.
I've been told not to run. Running will decrease the lifetime of my hip replacement and increase my chances of dislocation.
My doctors say it's not a big deal. I can ride a bicycle or swim--infinitely superior forms of exercise anyway.
My doctors have never survived rape. They don't live daily with PTSD. They don't understand the psychological significance running has for me. I've mentioned it to a few people, but I've never written it here--because it's silly:
When I run, I feel powerful and in control. No one can hurt me. I'll just run away from them. I'm not particularly fast, but I can run for a long, long time. Eventually, whomever wants to hurt me will get tired and stop chasing me. Running will keep me safe.
Do I know that's untrue? Yes. Do I understand that if I was truly a target for someone who wished to hurt me, chances are, running wouldn't really help? Yes. I completely understand that. But still, in my heart, I believe running will keep me safe. And somehow, when I think in my head, "I'll just jump on my bike and get away, should someone try to harm me," or "I'll just find a pool and swim really, really fast and the person who wants to hurt me will stay away because...he doesn't want to get wet...yeah...that's it..." Those thoughts just don't have the same protective impact as the running away thought does.
My surgeon says I'll feel better when I have my new hip. He says things will go well and he's happy I'm healthy, young, strong--unusual for him when it comes to hip replacement patients. He also says I get to choose how long I keep this particular hip. It will have to be replaced again, as the life of it is between 20 and 30 years for a sedentary person, and about 15 years for a moderately active person. Surgeon judges me to be more than moderately active, and suggests we shoot for at least 7-10 years on this particular hip. He says can't recommend running, but he knows some people do run on a hip replacement. He says I need to choose what activities will keep my quality of life optimal--but also says that if I choose to run, I shouldn't tell him about it.
I like my surgeon.
Getting my hip replaced is a good thing.
Tomorrow morning at 5 a.m., I will get in my car, drive three hours to the hospital, and by the afternoon, the procedure will be finished.
But today I keep crying about it. I'm the world's worst coward. I should be thinking of all the ways my life will be better--instead I'm thinking about how I really like my poor old hip and I'm sad that the surgeon is going to cut out my bones and take them away from me. I should be looking forward to less pain--but I'm thinking about the difficulty of physical therapy and remembering that I'm already tired and I don't want to do therapy again. I should be thinking about how, in a few weeks, I'll be able to sleep for more than an hour at a time at night--instead I'm worried about missing work because I'll be away from home for three days.
And did I mention that I'm kind of terrified about all this?
I need to stop being ridiculous.
Monday, February 17, 2014
Saturday, February 15, 2014
"We experience moments absolutely free from worry. These brief respites are called panic." ~Cullen Hightower
I'm an early riser. This doesn't mean I'm a morning person--just that I get up early. I can also stay up late with no problem. I've been known to stay up all night, grab a 2-3 hour nap in the morning, and have no problem with my sleep needs. I'm what's known as a "short sleeper". I have a genetic anomaly which actually causes me a great deal of misery if I get too much sleep. A sleep-in, for me, means my day will be pretty awful.
What this amounts to is a lot of alone time, something I usually enjoy. This morning, however, I awoke to continuous panic. A friend told me last night that I could call today--and I almost did. Then I remembered it was 5:00 a.m. on a Saturday, and there's also a one hour time difference which would make his time only 4 a.m. I decided no one loves me enough to field a panicked phone call at that time of day and put my phone away.
Panic makes me feel like screaming--and running. Especially when I don't know the source of it. I did neither. I worked steadily for about three hours, then I went to the gym. Usually this alleviates most of the panic, but today it hasn't put a dent in it. Darrin says it's understandable. I'm having hard, crunchy parts of my body cut out in three days. No one would feel especially relaxed about that. It was nice to have him sympathize. It would be nicer if he had stayed awake to talk me down. To his credit, he tried. But at this moment, he is snoring on the couch and has been in that position for an hour now.
Darrin took me to lunch yesterday for our anniversary/Valentine's Day. After years of coming home, exhausted by crowds and wishing we'd just stayed in and cuddled, we've learned to celebrate lightly on the day of, and do something romantic on a different evening when most couples are not vying for the same restaurant table, or theater tickets, that we want.
Valentine's Day, however, has always been a day I've loved. I've never ascribed it to romance, but rather, a special day to let people I care about know that they're important to me. I think this is because, growing up, Valentine's Day was the only day of the year my parents (mostly my mom) acknowledged that they loved me. I got a lovely card and sometimes a treat, and my mom made special once-a-year Valentine cookies. I loved them so much I had them served at my wedding. I suppose, for one day annually, I felt like I was loved--wanted--by my family.
So I made sure that others in my life knew of my love for them on Valentine's Day. I know many people despise the holiday. I understand why. I can't allow their negative experiences to change my feelings about a day of love for other people. I've always sent cards and chocolate (and sometimes those favorite cookies) to various people. One year my kids helped me make the cookies and we took them to several people in our neighborhood. No one understands the importance of the holiday to me--but I do, and I never want anyone in my life to doubt that I love them. I use the holiday to make sure they know.
Except this year I didn't. I've had so many consultations with doctors and surgeons and medical test people. And I've been trying to put in extra hours at work because I'll miss some time while I'm recovering from surgery. I'm scared, too. Probably that's stupid, but I am anyway.
I wish I'd been able to celebrate Valentine's Day as I wanted to.
I also think I want one of those chicken enchilada Subway sandwiches.
And I'd like to stop panicking. That would be good.
What this amounts to is a lot of alone time, something I usually enjoy. This morning, however, I awoke to continuous panic. A friend told me last night that I could call today--and I almost did. Then I remembered it was 5:00 a.m. on a Saturday, and there's also a one hour time difference which would make his time only 4 a.m. I decided no one loves me enough to field a panicked phone call at that time of day and put my phone away.
Panic makes me feel like screaming--and running. Especially when I don't know the source of it. I did neither. I worked steadily for about three hours, then I went to the gym. Usually this alleviates most of the panic, but today it hasn't put a dent in it. Darrin says it's understandable. I'm having hard, crunchy parts of my body cut out in three days. No one would feel especially relaxed about that. It was nice to have him sympathize. It would be nicer if he had stayed awake to talk me down. To his credit, he tried. But at this moment, he is snoring on the couch and has been in that position for an hour now.
Darrin took me to lunch yesterday for our anniversary/Valentine's Day. After years of coming home, exhausted by crowds and wishing we'd just stayed in and cuddled, we've learned to celebrate lightly on the day of, and do something romantic on a different evening when most couples are not vying for the same restaurant table, or theater tickets, that we want.
Valentine's Day, however, has always been a day I've loved. I've never ascribed it to romance, but rather, a special day to let people I care about know that they're important to me. I think this is because, growing up, Valentine's Day was the only day of the year my parents (mostly my mom) acknowledged that they loved me. I got a lovely card and sometimes a treat, and my mom made special once-a-year Valentine cookies. I loved them so much I had them served at my wedding. I suppose, for one day annually, I felt like I was loved--wanted--by my family.
So I made sure that others in my life knew of my love for them on Valentine's Day. I know many people despise the holiday. I understand why. I can't allow their negative experiences to change my feelings about a day of love for other people. I've always sent cards and chocolate (and sometimes those favorite cookies) to various people. One year my kids helped me make the cookies and we took them to several people in our neighborhood. No one understands the importance of the holiday to me--but I do, and I never want anyone in my life to doubt that I love them. I use the holiday to make sure they know.
Except this year I didn't. I've had so many consultations with doctors and surgeons and medical test people. And I've been trying to put in extra hours at work because I'll miss some time while I'm recovering from surgery. I'm scared, too. Probably that's stupid, but I am anyway.
I wish I'd been able to celebrate Valentine's Day as I wanted to.
I also think I want one of those chicken enchilada Subway sandwiches.
And I'd like to stop panicking. That would be good.
Friday, February 14, 2014
Good-byes
A long time ago I was chatting with Tolkien Boy. I was telling him something--I don't remember what--but he stopped me and said, "It sounds like you're saying good-bye." This was an old theme. I was always threatening to go away, not from a place of emotional manipulation, but because staying in any close relationship made me feel stressed and frustrated. So it was not unusual for me to take breaks, or disappear for a few days, or discuss the possibility of not being a permanent person. Honestly, I'm still a little puzzled as to why TB is still around at all.
But I've come to a number of realizations since that time and I think I'll share here, a tiny bit of what I learned.
I was saying good-bye. Not in the way TB meant, but definitely bidding a farewell of sorts.
You see, many times I have ideas and wishes which involve another person. Those are deeply felt and, I believe, sweet and good. However, they belong to me, and not to us. In truth, there really is no "us". When reality would hit and I would look at one of those things in my head or heart, and recognize that the wish was not shared by the other person involved, it was difficult for me.
I assume this type of thing takes place in adolescence and teenhood, when most people learn about feelings and reality. I did some of that as a teen, but I was also very separate from the effect of feelings. When a friendship or romance went badly, it was easy for me to look at it logically, briefly feel sad, and move on--effectively circumventing the natural process of grieving.
What I'm talking about now is different, of course, but I don't believe it's abnormal to wish to spend time with loved ones, regardless of whether or not those loved ones are platonic or romantic. And I don't believe it's unusual to have expectations or wishes within those same relationships that are not shared by both participants.
There was never anything profound about the things I wanted. Those wishes were small, insignificant, and to mention them would be silly. But in my heart, they had deep meaning, connections only I could understand, and were deeply rooted in the desperate needs I developed a long time ago.
So I was saying good-bye. Not to Tolkien Boy or anyone else. Not to my relationships or chat times or hopes for continued sociality. I was saying good-bye to those tiny little things I wanted; things that would make me whole but which I had no right to ask. I was understanding that who I have become will always be broken in some ways and I cannot ask well-meaning, kind friends to help me mend.
It's a difficult process--coming to such an understanding and letting go of the desperate hope that has always existed, but has never been acknowledged. I still do it. I have piles of such wishes and dreams inside of me. Slowly, very slowly, I have let them go and accepted the hole left behind. It's okay to be broken. One can still love and be loved. Life continues, relentlessly passing, and I can choose to hide behind the piles of all the wished-for things, or I can grieve the loss and take life as it comes.
I'm getting better at recognizing what's happening when one of those tiny needs and wishes dies; when I recognize that I have no right to ask anything of anyone when it benefits only me; when I assume there is an "us" when there is not. I'm getting better at not expressing the good-bye because it only serves to confuse whomever might be with me in the moment. I'm getting better at moving on.
But the cost seems to be that I am less hopeful, less brilliant, more willing to accept that life cannot become better and other people cannot help. I am saying good-bye but I'm not going away. I need to think about this a little bit more, because I don't really know how I feel about it.
But I've come to a number of realizations since that time and I think I'll share here, a tiny bit of what I learned.
I was saying good-bye. Not in the way TB meant, but definitely bidding a farewell of sorts.
You see, many times I have ideas and wishes which involve another person. Those are deeply felt and, I believe, sweet and good. However, they belong to me, and not to us. In truth, there really is no "us". When reality would hit and I would look at one of those things in my head or heart, and recognize that the wish was not shared by the other person involved, it was difficult for me.
I assume this type of thing takes place in adolescence and teenhood, when most people learn about feelings and reality. I did some of that as a teen, but I was also very separate from the effect of feelings. When a friendship or romance went badly, it was easy for me to look at it logically, briefly feel sad, and move on--effectively circumventing the natural process of grieving.
What I'm talking about now is different, of course, but I don't believe it's abnormal to wish to spend time with loved ones, regardless of whether or not those loved ones are platonic or romantic. And I don't believe it's unusual to have expectations or wishes within those same relationships that are not shared by both participants.
There was never anything profound about the things I wanted. Those wishes were small, insignificant, and to mention them would be silly. But in my heart, they had deep meaning, connections only I could understand, and were deeply rooted in the desperate needs I developed a long time ago.
So I was saying good-bye. Not to Tolkien Boy or anyone else. Not to my relationships or chat times or hopes for continued sociality. I was saying good-bye to those tiny little things I wanted; things that would make me whole but which I had no right to ask. I was understanding that who I have become will always be broken in some ways and I cannot ask well-meaning, kind friends to help me mend.
It's a difficult process--coming to such an understanding and letting go of the desperate hope that has always existed, but has never been acknowledged. I still do it. I have piles of such wishes and dreams inside of me. Slowly, very slowly, I have let them go and accepted the hole left behind. It's okay to be broken. One can still love and be loved. Life continues, relentlessly passing, and I can choose to hide behind the piles of all the wished-for things, or I can grieve the loss and take life as it comes.
I'm getting better at recognizing what's happening when one of those tiny needs and wishes dies; when I recognize that I have no right to ask anything of anyone when it benefits only me; when I assume there is an "us" when there is not. I'm getting better at not expressing the good-bye because it only serves to confuse whomever might be with me in the moment. I'm getting better at moving on.
But the cost seems to be that I am less hopeful, less brilliant, more willing to accept that life cannot become better and other people cannot help. I am saying good-bye but I'm not going away. I need to think about this a little bit more, because I don't really know how I feel about it.
Wednesday, February 12, 2014
Why I Don't Take Pain Killers, and other stories
Actually, there probably won't be any other stories.
I'm not talking about OTC pain relief. Sometimes I take those--except for ibuprofen, because I'm allergic to it. I'm talking about prescription pain drugs. I try not to take those.
But my current surgeon/doctor has asked me to take Percocet (oxycodone) during the night until my surgery so that I can sleep better. He believes I'll heal faster and be able to manage PTSD more productively if I'm not sleep deprived. I tried to tell him it's difficult for me to become sleep deprived. He said he wouldn't insist, but he wanted me to take the pills at night if I could.
So I have been. For about 10 days now.
Here's what happens when I take oxycodone:
1. It makes me sleepy, but doesn't necessarily make me sleep. It's possible for me to wake myself up and stay awake, even if I seem a little woozy.
2. It doesn't really affect my pain level, but the pain seems inconsequential. It's still there, I just don't care about it.
3. The pills do affect my emotional state. They remove all the built up stress and panic and I feel very relaxed and a great deal of relief. And that's the problem.
Anyone who has experienced problems with chronic stress/panic understands that when those things are gone, however briefly, the feeling of relief is overwhelming. For me, that relaxation of tension in my guts is the best feeling in the world. I want it badly. In fact, I want it so much that when I identify a source of that release, I've been known to do just about anything I can to get my "fix" as often as possible. Physical contact from certain people in my life gives me that relief. With those unfortunate individuals I become a cuddle whore. I have to monitor my actions when I'm with them so they don't feel smothered or aggravated by my need for touch, which in turn causes me so much stress that I find myself wishing they were far away so I could stop wanting to be next to them. Catch-22.
So when I find the source of my "fix" in the form of a pill--something that can't be aggravated or annoyed by my need to ingest it--well, that creates a new problem.
As mentioned above, I've been taking oxycodone for about 10 days. At this point, my entire day is spent waiting for the time when I can take a couple of pills and go to bed. Yup. That's all I want. I don't want to talk to people, or work, or practice the piano, or read--I just want to take a pill.
Once I take the pills, I sleep off the initial drowsiness (about an hour), then I wake myself up and enjoy the sensation of not having a panic attack. I usually do this for 3-4 hours (so much for getting a good night's sleep). When the pills start wearing off, I'll allow myself to sleep for 2-3 hours. Then I get up--because that means it's day and when night comes again, I get to take more "medicine."
It's plenty embarrassing to admit that I have a propensity for addiction. I'm willing to shoulder the embarrassment and be honest about what's happening to me. I told Darrin this morning. I'll probably talk with Therapist before Friday. Oversight is good.
The thought of discontinuing the pain meds makes me weep a little. When you spend most of your life so stressed that it feels normal, to find relief from that is heavenly. But I'm not stupid. While spending the rest of my life popping pain killers actually sounds like a really great idea right now, I know it's not.
Okay. Complete honesty: The thought of going without the oxycodone is completely overwhelming and it has nothing to do with pain management. Probably it's time to stop.
There are times when I really hate the fact that I have PTSD and all it's accompanying delights. It sucks.
I'm not talking about OTC pain relief. Sometimes I take those--except for ibuprofen, because I'm allergic to it. I'm talking about prescription pain drugs. I try not to take those.
But my current surgeon/doctor has asked me to take Percocet (oxycodone) during the night until my surgery so that I can sleep better. He believes I'll heal faster and be able to manage PTSD more productively if I'm not sleep deprived. I tried to tell him it's difficult for me to become sleep deprived. He said he wouldn't insist, but he wanted me to take the pills at night if I could.
So I have been. For about 10 days now.
Here's what happens when I take oxycodone:
1. It makes me sleepy, but doesn't necessarily make me sleep. It's possible for me to wake myself up and stay awake, even if I seem a little woozy.
2. It doesn't really affect my pain level, but the pain seems inconsequential. It's still there, I just don't care about it.
3. The pills do affect my emotional state. They remove all the built up stress and panic and I feel very relaxed and a great deal of relief. And that's the problem.
Anyone who has experienced problems with chronic stress/panic understands that when those things are gone, however briefly, the feeling of relief is overwhelming. For me, that relaxation of tension in my guts is the best feeling in the world. I want it badly. In fact, I want it so much that when I identify a source of that release, I've been known to do just about anything I can to get my "fix" as often as possible. Physical contact from certain people in my life gives me that relief. With those unfortunate individuals I become a cuddle whore. I have to monitor my actions when I'm with them so they don't feel smothered or aggravated by my need for touch, which in turn causes me so much stress that I find myself wishing they were far away so I could stop wanting to be next to them. Catch-22.
So when I find the source of my "fix" in the form of a pill--something that can't be aggravated or annoyed by my need to ingest it--well, that creates a new problem.
As mentioned above, I've been taking oxycodone for about 10 days. At this point, my entire day is spent waiting for the time when I can take a couple of pills and go to bed. Yup. That's all I want. I don't want to talk to people, or work, or practice the piano, or read--I just want to take a pill.
Once I take the pills, I sleep off the initial drowsiness (about an hour), then I wake myself up and enjoy the sensation of not having a panic attack. I usually do this for 3-4 hours (so much for getting a good night's sleep). When the pills start wearing off, I'll allow myself to sleep for 2-3 hours. Then I get up--because that means it's day and when night comes again, I get to take more "medicine."
It's plenty embarrassing to admit that I have a propensity for addiction. I'm willing to shoulder the embarrassment and be honest about what's happening to me. I told Darrin this morning. I'll probably talk with Therapist before Friday. Oversight is good.
The thought of discontinuing the pain meds makes me weep a little. When you spend most of your life so stressed that it feels normal, to find relief from that is heavenly. But I'm not stupid. While spending the rest of my life popping pain killers actually sounds like a really great idea right now, I know it's not.
Okay. Complete honesty: The thought of going without the oxycodone is completely overwhelming and it has nothing to do with pain management. Probably it's time to stop.
There are times when I really hate the fact that I have PTSD and all it's accompanying delights. It sucks.
Tuesday, February 4, 2014
Retiring My Wonder Woman Status
I have always been strong. Often it got me into trouble.
Age six: I live in Ogden, UT. We have a very large tree in our front yard, with a thick branch extending straight out from the middle. My father, because safety has never really been something he thinks about regularly (yes, it's a miracle I'm still alive), rigs a long rope with a 10-inch dowel attached at the bottom (so we could sit or hang from it) from a much higher branch, and we stand on the lateral branch and leap off.
I loved the swing. I don't believe I ever sat on it, but I learned all sorts of rope tricks during gym time at school. I could climb the rope and ring the bell. I could straighten my body upwards while hanging upside-down, I could wrap the rope several times around my thigh and hang from the rope, no-handed, upside-down (no, this was not sanctioned by the gym teacher). And the beautiful thing was that those last two tricks translated well on our homemade swing. There was nothing more amazing than hanging upside-down and swinging.
My older sister wasn't as flexible or daring as I was, but she could climb. So one day she climbed the tree as high as she felt safe--then dared me to climb higher. So I did (one does not think these things through at six years of age). And I got really, really high. It was amazing. And then I tried to climb down. Turns out up is easier than down.
I couldn't do it. My mother tried to have my older sister climb up and show me where the footholds were to get down. She couldn't quite get high enough, and every time she would get close, I would scream at her to get away. Yeah, I'm cooperative. My mom said I'd have to stay up there forever. I pondered. At the moment, it didn't seem a bad plan. I was comfortable. There was a fork in the branches where I could straddle the branches and sleep (nope, didn't think about falling out while I was asleep--remember--six years old). My mom said they'd have to tie my meals to the swing and toss them up to me. I thought that was the coolest thing I'd ever heard.
My mom gave up and called the fire department. In a minute or two, a hook-and-ladder truck was in front of my house and a fireman was helping me out of the tree. Once I was off the branch, I was ready to see how fast I could go down the ladder and I was very put out at the fireman who insisted on descending before me and showing me how to put my feet carefully on the next rung. I said, "I know how to go down a ladder." He said, "I'm sure you do. Now, carefully lower your foot to the next rung and don't move your hands until both feet are on the same rung." It took forever.
So one could analyze this story and say I was reckless--but I was six. I'm cutting myself some slack. However, that same driven, recklessness has been a part of who I am for all my life. And the physical strength I enjoyed as a six-year-old, has been present, as well. I'm small but compact. I spent a good part of my life hauling hay, driving tractors, feeding livestock, moving hand irrigation, fixing fence, and doing whatever heavy, dirty job needed to be done.
I've also dealt with some pretty hefty emotional crap, and I think, given my age and the circumstances, I was fairly strong then, too.
My kids have always jokingly referred to me as "Wonder Woman". I've always assumed it was because I spend my day in a glittery bustier/blue underwear combo, complete with awesome high-heeled boots, but they say it's because I've always been able to do whatever I wanted, physically, emotionally, and mentally. They don't actually know if this is true, because I haven't told them when I failed miserably (or I took some time and flew away in my invisible plane until I could put on a happy face about everything). It also could have something to do with the fact that I always knew when they were lying--they believe my lasso of truth was cluing me in. I've told them that's just a mom thing. They don't believe me.
I'm not strong anymore.
The past four years, dealing with a suicidal daughter, learning of her abuse by my own brother, having to place her in a treatment facility--these things have robbed me of my emotional resilience.
The physical problems I've had in the past four years--four surgeries for various reasons, deterioration of bone and cartilage in my hip, increasingly intense pain--these things have gradually robbed me of my physical strength.
The past four years of declining ability to use physical activity to deal with stress and manage PTSD, being emotionally overwhelmed, feeling panicked all the time--these things have robbed me of my mental stamina.
Tabitha is home now and doing well. I've put a plan in place for when my family is unsupportive or unbelieving about the abuse she has suffered--and I've stuck with the plan for nearly a year now. I'm getting surgery which won't restore me to my original state, but will relieve pain and allow me movement again. I'm doing things to put my brain back together, learning new ways to manage PTSD, and learning how to find small bits of hope for the future.
But for now, I'm hanging up my Wonder Woman title. While I'll miss the ultra-comfy clothing and footgear, I need to stop trying to be something I'm not. At this point in my life, loading the dishwasher, making my bed, and vacuuming are challenging for me. I'm just not up to making the world a better place.
I'll be renting out my lasso and invisible plane. You're free to take them for a test drive. If you can see them.
Age six: I live in Ogden, UT. We have a very large tree in our front yard, with a thick branch extending straight out from the middle. My father, because safety has never really been something he thinks about regularly (yes, it's a miracle I'm still alive), rigs a long rope with a 10-inch dowel attached at the bottom (so we could sit or hang from it) from a much higher branch, and we stand on the lateral branch and leap off.
I loved the swing. I don't believe I ever sat on it, but I learned all sorts of rope tricks during gym time at school. I could climb the rope and ring the bell. I could straighten my body upwards while hanging upside-down, I could wrap the rope several times around my thigh and hang from the rope, no-handed, upside-down (no, this was not sanctioned by the gym teacher). And the beautiful thing was that those last two tricks translated well on our homemade swing. There was nothing more amazing than hanging upside-down and swinging.
My older sister wasn't as flexible or daring as I was, but she could climb. So one day she climbed the tree as high as she felt safe--then dared me to climb higher. So I did (one does not think these things through at six years of age). And I got really, really high. It was amazing. And then I tried to climb down. Turns out up is easier than down.
I couldn't do it. My mother tried to have my older sister climb up and show me where the footholds were to get down. She couldn't quite get high enough, and every time she would get close, I would scream at her to get away. Yeah, I'm cooperative. My mom said I'd have to stay up there forever. I pondered. At the moment, it didn't seem a bad plan. I was comfortable. There was a fork in the branches where I could straddle the branches and sleep (nope, didn't think about falling out while I was asleep--remember--six years old). My mom said they'd have to tie my meals to the swing and toss them up to me. I thought that was the coolest thing I'd ever heard.
My mom gave up and called the fire department. In a minute or two, a hook-and-ladder truck was in front of my house and a fireman was helping me out of the tree. Once I was off the branch, I was ready to see how fast I could go down the ladder and I was very put out at the fireman who insisted on descending before me and showing me how to put my feet carefully on the next rung. I said, "I know how to go down a ladder." He said, "I'm sure you do. Now, carefully lower your foot to the next rung and don't move your hands until both feet are on the same rung." It took forever.
So one could analyze this story and say I was reckless--but I was six. I'm cutting myself some slack. However, that same driven, recklessness has been a part of who I am for all my life. And the physical strength I enjoyed as a six-year-old, has been present, as well. I'm small but compact. I spent a good part of my life hauling hay, driving tractors, feeding livestock, moving hand irrigation, fixing fence, and doing whatever heavy, dirty job needed to be done.
I've also dealt with some pretty hefty emotional crap, and I think, given my age and the circumstances, I was fairly strong then, too.
My kids have always jokingly referred to me as "Wonder Woman". I've always assumed it was because I spend my day in a glittery bustier/blue underwear combo, complete with awesome high-heeled boots, but they say it's because I've always been able to do whatever I wanted, physically, emotionally, and mentally. They don't actually know if this is true, because I haven't told them when I failed miserably (or I took some time and flew away in my invisible plane until I could put on a happy face about everything). It also could have something to do with the fact that I always knew when they were lying--they believe my lasso of truth was cluing me in. I've told them that's just a mom thing. They don't believe me.
I'm not strong anymore.
The past four years, dealing with a suicidal daughter, learning of her abuse by my own brother, having to place her in a treatment facility--these things have robbed me of my emotional resilience.
The physical problems I've had in the past four years--four surgeries for various reasons, deterioration of bone and cartilage in my hip, increasingly intense pain--these things have gradually robbed me of my physical strength.
The past four years of declining ability to use physical activity to deal with stress and manage PTSD, being emotionally overwhelmed, feeling panicked all the time--these things have robbed me of my mental stamina.
Tabitha is home now and doing well. I've put a plan in place for when my family is unsupportive or unbelieving about the abuse she has suffered--and I've stuck with the plan for nearly a year now. I'm getting surgery which won't restore me to my original state, but will relieve pain and allow me movement again. I'm doing things to put my brain back together, learning new ways to manage PTSD, and learning how to find small bits of hope for the future.
But for now, I'm hanging up my Wonder Woman title. While I'll miss the ultra-comfy clothing and footgear, I need to stop trying to be something I'm not. At this point in my life, loading the dishwasher, making my bed, and vacuuming are challenging for me. I'm just not up to making the world a better place.
I'll be renting out my lasso and invisible plane. You're free to take them for a test drive. If you can see them.
Tuesday, January 28, 2014
I don't like ice cream.
This morning I sat in a square of sunshine on my living room floor and ate salted caramel gelato for breakfast. I did this because:
1. It's not good for me.
2. I'm lactose intolerant so it's REALLY not good for me.
3. It tasted good.
4. I wanted it.
5. I'm an adult and I don't have a mom to tell me I can't eat ice cream for breakfast.
I tell people I don't like ice cream. This isn't untrue--I don't really like it. But sometimes I want it because everyone else in the world seems to love it and I feel I'm a bit of a freak because I don't. I've learned to choose wisely, however, when I try ice cream to see if I still don't like it. I choose a variety that is very expensive, high quality, and includes ingredients I like outside of the ice cream (like nuts or salted caramel), and I don't eat very much of it. I've learned to stop after my third bite.
So, to be accurate, this morning I sat in a square of sunshine on my living room floor and ate three bites of salted caramel gelato for breakfast.
Then I ate an apple. I think this is a very good breakfast. Darrin doesn't. So I made myself a lactose-free protein shake and drank half of it. Protein shakes do not taste as good as apples. Or gelato.
DJ moved in with us last year so he could save money to go back to school, and recover from his knee surgery. He went to one part-time semester of school, and also got his EMT certification. Now he just wants to be an EMT. No more school. But EMT jobs are scarce.
Adam has been telling us since he was 17 that he was moving out soon and going to college in Australia. He's been looking at apartments and going to school. But last year he began having migraines--3-5 weekly. We were alarmed. He was missing a great deal of school and felt miserable. So I took Adam to a neurologist who prescribed an epilepsy medication. From the day he took the first dose, Adam has not had a migraine. However, he did experience debilitating fatigue, fogginess in his brain, and a complete personality change. Once again, we were alarmed. Adam is now medication-free and migraine-free, and slowly returning back to normal. But his grades during the first year of college were terrible. Adam petitioned the scholarship department, explained the situation, and his scholarship was reinstated for this year, but last semester wasn't stellar. Adam now tells us that he has no plans to move away from home. He's sticking around for awhile until he can figure out how to manage money, keep a good job, and not fail at life.
Tabitha planned to live at home for a year, complete gen-eds, apply to the nursing program in the fall of 2014, and leave home to attend said nursing program at that time. She's been working and going to school full-time and last semester was pretty tense as she tried to figure out how to fit 25-30 work hours, 16 credit hours, homework, and sleep into her life. She did it, but just barely. Now I understand that the current life plan has changed. She's not leaving home in the fall, she's staying another year and completing an Associates degree in psychology.
Darrin and I have a bucket list of things we will do when our children are gone. I want to do those things.
Don't get me wrong. I love having these kiddos at home. But it's kind of like living with three roommates who haven't figured out how to be grown-ups yet. And they don't like it when I say, "You're adults. Stop asking me to intervene in disagreements. Clean up after yourselves. Don't take it personally if you have to make meals, do laundry, and pay for your upkeep. We'll help, but you need to learn to be your own person."
Nor do they like it when I remind them that the upstairs bathroom is not their exclusive property, but is also our guest bathroom so they need to keep it clean and keep toilet paper on the proper bathroom appliance.
Darrin says I'm just feeling cranky lately, and he's right. I actually love having these three amazing people living with me. But solitude has been more than just a little bit appealing in the past few weeks, and it's rare in our house. DJ keeps to himself, so I actually don't mind it when he's home. But Adam wants to talk constantly and expects me to respond, and even though Tabitha just wants to talk (no response required), that can become a little trying, as well. Adam and Tabitha find me no matter where I go, and they always have something to say. Darrin says I'll miss this when they're gone. Probably he's right.
Darrin asked me yesterday what bugs me so much about having my children at home right now. I thought for a moment, then I said, "Their rooms are scary messy and they're too old now, for me to tell them to clean them."
I really do think that's the problem. And when your kids are too old to be bossed around anymore, you just have to sit in the sun and eat three bites of gelato. . .
1. It's not good for me.
2. I'm lactose intolerant so it's REALLY not good for me.
3. It tasted good.
4. I wanted it.
5. I'm an adult and I don't have a mom to tell me I can't eat ice cream for breakfast.
I tell people I don't like ice cream. This isn't untrue--I don't really like it. But sometimes I want it because everyone else in the world seems to love it and I feel I'm a bit of a freak because I don't. I've learned to choose wisely, however, when I try ice cream to see if I still don't like it. I choose a variety that is very expensive, high quality, and includes ingredients I like outside of the ice cream (like nuts or salted caramel), and I don't eat very much of it. I've learned to stop after my third bite.
So, to be accurate, this morning I sat in a square of sunshine on my living room floor and ate three bites of salted caramel gelato for breakfast.
Then I ate an apple. I think this is a very good breakfast. Darrin doesn't. So I made myself a lactose-free protein shake and drank half of it. Protein shakes do not taste as good as apples. Or gelato.
DJ moved in with us last year so he could save money to go back to school, and recover from his knee surgery. He went to one part-time semester of school, and also got his EMT certification. Now he just wants to be an EMT. No more school. But EMT jobs are scarce.
Adam has been telling us since he was 17 that he was moving out soon and going to college in Australia. He's been looking at apartments and going to school. But last year he began having migraines--3-5 weekly. We were alarmed. He was missing a great deal of school and felt miserable. So I took Adam to a neurologist who prescribed an epilepsy medication. From the day he took the first dose, Adam has not had a migraine. However, he did experience debilitating fatigue, fogginess in his brain, and a complete personality change. Once again, we were alarmed. Adam is now medication-free and migraine-free, and slowly returning back to normal. But his grades during the first year of college were terrible. Adam petitioned the scholarship department, explained the situation, and his scholarship was reinstated for this year, but last semester wasn't stellar. Adam now tells us that he has no plans to move away from home. He's sticking around for awhile until he can figure out how to manage money, keep a good job, and not fail at life.
Tabitha planned to live at home for a year, complete gen-eds, apply to the nursing program in the fall of 2014, and leave home to attend said nursing program at that time. She's been working and going to school full-time and last semester was pretty tense as she tried to figure out how to fit 25-30 work hours, 16 credit hours, homework, and sleep into her life. She did it, but just barely. Now I understand that the current life plan has changed. She's not leaving home in the fall, she's staying another year and completing an Associates degree in psychology.
Darrin and I have a bucket list of things we will do when our children are gone. I want to do those things.
Don't get me wrong. I love having these kiddos at home. But it's kind of like living with three roommates who haven't figured out how to be grown-ups yet. And they don't like it when I say, "You're adults. Stop asking me to intervene in disagreements. Clean up after yourselves. Don't take it personally if you have to make meals, do laundry, and pay for your upkeep. We'll help, but you need to learn to be your own person."
Nor do they like it when I remind them that the upstairs bathroom is not their exclusive property, but is also our guest bathroom so they need to keep it clean and keep toilet paper on the proper bathroom appliance.
Darrin says I'm just feeling cranky lately, and he's right. I actually love having these three amazing people living with me. But solitude has been more than just a little bit appealing in the past few weeks, and it's rare in our house. DJ keeps to himself, so I actually don't mind it when he's home. But Adam wants to talk constantly and expects me to respond, and even though Tabitha just wants to talk (no response required), that can become a little trying, as well. Adam and Tabitha find me no matter where I go, and they always have something to say. Darrin says I'll miss this when they're gone. Probably he's right.
Darrin asked me yesterday what bugs me so much about having my children at home right now. I thought for a moment, then I said, "Their rooms are scary messy and they're too old now, for me to tell them to clean them."
I really do think that's the problem. And when your kids are too old to be bossed around anymore, you just have to sit in the sun and eat three bites of gelato. . .
Saturday, January 25, 2014
This will be a very odd post, which means, of course, that I've been doing therapy stuff. This particular thing has been hanging around for years. I've been kicking it back, avoiding it--probably because I know what it reveals about me and I don't like it. But not liking something doesn't mean it's not real.
I've noticed that when things in my life become stressful, I'm more inclined to look honestly at myself, which makes me more likely to finish tasks from therapy. I sometimes think I should wait until I'm feeling better, but that never happens. When I feel level and happy, I'm more likely to just accept whatever is amiss inside me. It's not bothering me, so why expend effort trying to figure out what it means? So I've been working a great deal lately, on things that Therapist and I have discussed for the past ten years.
Therapist used to tell me, "The only relationship in your life that REALLY matters is the one you have with your spouse."
In my head, this is how that translated:
People come and go. Some stay longer than others. But it doesn't really matter because in the end, the only one you're really tied to is your spouse. No matter how much you try to foster any other relationship, it will end. Your children will leave you to find spouses of their own. Your friends will leave or die. Your progeny will eventually regard you as the laughable old woman who, at dinnertime, rolls food around in her mouth because she can't chew it, then puts it back on her plate, sits in her chair, and mutters. Only your spouse remains with you and remembers who you really are.
My interpretation of that translation: Relationships are sort of pointless. Except spousal ones, of course.
Therapist says this is not what he meant at all. Therapist's translation:
Your spouse is your major source of love and support. You've made covenants with one another that you will never leave, you'll work on always building the relationship, you'll forgive and move forward, you'll be best friends and lovers, and each will always come first in the other's life. Other relationships are not built to be as close or resilient. Children leave parents to make their own lives and families--but they remain in their parents' lives, just not as present. Friendships wax and wane because they have their own families and spouses which must, of necessity, come first. But no one really forgets their friends, and when time permits, they rejoin and spend limited time together. However, your spouse is a constant and should always be given priority over any other person.
Therapist's interpretation of this: All relationships are valuable, but emphasis must always be placed on those that are spousal.
Therapist is correct. I've always known that. And I don't disagree, necessarily. But I have always had difficulty maintaining relationships--always. Therapist traces this to the breakdown of the childhood relationship I had with my parents who were largely unreliable and unavailable, emotionally, and who discouraged any closeness or intimacy I might initiate. When you're a little girl and you really need a hug, you go to your mom or dad, I think. I was too afraid of my mother. My dad would hug me briefly, then move away. My little girl impression of the act was that touching me was embarrassing to him.
Little girls form friendships quickly and deeply. Holding hands and cuddling are part of that--at least they were when I was a child. Perhaps in today's world, where homosexuality is a hypertopic and people are highly sensitive to how their acts with another person are interpreted, little girls are encouraged to touch less. I don't really know. I'm hypothesizing. I hope I'm wrong. Such touch, for me, was the only real affection I received between the ages of six through twelve.
As I grew up, I had no interest in dating boys--but they seemed interested in dating me. So I did. And I had boyfriends. And I let them cuddle and kiss because I really, really wanted that. However, it seemed to affect them more deeply than it did me, and after awhile I was finished with that. I wanted nothing more than to be held and loved. The boyfriends definitely weren't satisfied with only that.
Darrin, alone, seemed to understand my need to be touched without strings attached. Granted, he was the first person I told of the sexual and physical abuse in my life, so he understood my background, but it was clear to me that he would allow me to call the shots when it came to our physical interaction--which is one of many reasons that I married him.
And for a long time, Darrin WAS all I needed. He was my most important relationship--my only important relationship. After my children were born, I experienced new levels of relationship depth. Other people came and went. I enjoyed them but had no desire to work to make secure friendships with them. That desire has never been paramount for me. And when they left, I felt a tiny shock of loneliness, then turned immediately to Darrin to appease it.
Unhealthy?
No doubt about it. And I was lonely. I ignored the loneliness and filled my life with other things, other temporary people, other books to read or music to play. I learned new skills and got new jobs and refused to think about loneliness or friends or anything that caused me discomfort. After all, in the end, I had Darrin, and that was all that mattered.
Ten years ago I began to face the things that haunt me. I went to a therapist (or two...or three...or four...and then finally found a good fit in Therapist). I stopped running. I decided to look at the things that scare me. At the top of my list were "People". I told Therapist I was going to learn to have real relationships outside of Darrin and my kids. He looked alarmed and immediately told me that those were my most important relationships. I knew that. I just wanted to see if I could have more--other relationships with other people--relationships that could last longer than a few months or a year.
So I did. And I wrote about it in my blogs. A lot.
Maintaining longterm contact with people was difficult for me, and very stressful. There were many times when I just wanted to cut everyone loose and never see them again. Sometimes I would hide for a week while I collected myself, gathered strength, and decided to keep trying.
I don't expect anyone to understand this. I know of many people who maintain their relationships with no problem or conflict or stress. I'm not one of them. It's hard for me. I'm afraid of people.
In spite of everything, I've had quite a few friendshps that have endured nearly 8 years now. That's a very long time. And I think I can truly say that I did it--we did it. I'm not eternally damaged by abuse and rape and I can be as human as the next person. But what I've noticed in the past year is that my drive to maintain my relationships is waning. I don't love the people less. I still want them. I just don't feel that, should the relationships become less important to all parties concerned, it doesn't say anything about me or my ability to interact with people. And at this point, all of us have spouses--and our spousal relationships are supposed to be the most important.
I guess I'm just feeling that after all is said and done, as close as we've been, as important as I might be (which isn't hugely important, I admit), I'm not really irreplaceable, and should I no longer be in the picture (for whatever reason), everyone still has their spouses, and that's what matters. But Therapist says it's not a black-and-white issue, even though that's what he said at first. And he says part of the reason he feels that way is because in the last decade I've convinced him otherwise. While he still believes that spousal relationships are parmount, there are equally important relationships that serve different purposes which should be nurtured and cherished. And he says I'm really not replaceable.
I don't know that I believe him. I often feel that I'm a convenient diversion. I don't object to being that. But sometimes I would like to feel that I make people's lives better and that they seek me out because I provide something they want and need.
My parents hug me now. It's awkward and I don't like it. They do it because they understood, too late, how hurt I was growing up and they DO love me, and they want to make things right, somehow. They can't--but I let them hug me anyway because it seems to make them feel better. It doesn't make me feel better, but it doesn't hurt me either. I guess that's what I don't want my relationships with other people to become--something they allow to happen because, even if they don't really like it, it doesn't hurt them and it seems to help me. That, in my mind, is not honest or healthy. I want more.
And maybe that's the entire problem expressed in three words. I want more. But maybe "more" is a figment of my imagination. Therapist says it's not, but he also says he was wrong about the importance of non-spousal relationships, and quite frankly, I don't think he knows any more than I do.
Last night I questioned a number of people who are currently present in my life about this topic. They all think I'm delving too deeply and I just need to let life happen and enjoy it. Maybe they're right--but it also illustrates how little they know me.
Okay. I'm done. Time to go to the gym.
I've noticed that when things in my life become stressful, I'm more inclined to look honestly at myself, which makes me more likely to finish tasks from therapy. I sometimes think I should wait until I'm feeling better, but that never happens. When I feel level and happy, I'm more likely to just accept whatever is amiss inside me. It's not bothering me, so why expend effort trying to figure out what it means? So I've been working a great deal lately, on things that Therapist and I have discussed for the past ten years.
Therapist used to tell me, "The only relationship in your life that REALLY matters is the one you have with your spouse."
In my head, this is how that translated:
People come and go. Some stay longer than others. But it doesn't really matter because in the end, the only one you're really tied to is your spouse. No matter how much you try to foster any other relationship, it will end. Your children will leave you to find spouses of their own. Your friends will leave or die. Your progeny will eventually regard you as the laughable old woman who, at dinnertime, rolls food around in her mouth because she can't chew it, then puts it back on her plate, sits in her chair, and mutters. Only your spouse remains with you and remembers who you really are.
My interpretation of that translation: Relationships are sort of pointless. Except spousal ones, of course.
Therapist says this is not what he meant at all. Therapist's translation:
Your spouse is your major source of love and support. You've made covenants with one another that you will never leave, you'll work on always building the relationship, you'll forgive and move forward, you'll be best friends and lovers, and each will always come first in the other's life. Other relationships are not built to be as close or resilient. Children leave parents to make their own lives and families--but they remain in their parents' lives, just not as present. Friendships wax and wane because they have their own families and spouses which must, of necessity, come first. But no one really forgets their friends, and when time permits, they rejoin and spend limited time together. However, your spouse is a constant and should always be given priority over any other person.
Therapist's interpretation of this: All relationships are valuable, but emphasis must always be placed on those that are spousal.
Therapist is correct. I've always known that. And I don't disagree, necessarily. But I have always had difficulty maintaining relationships--always. Therapist traces this to the breakdown of the childhood relationship I had with my parents who were largely unreliable and unavailable, emotionally, and who discouraged any closeness or intimacy I might initiate. When you're a little girl and you really need a hug, you go to your mom or dad, I think. I was too afraid of my mother. My dad would hug me briefly, then move away. My little girl impression of the act was that touching me was embarrassing to him.
Little girls form friendships quickly and deeply. Holding hands and cuddling are part of that--at least they were when I was a child. Perhaps in today's world, where homosexuality is a hypertopic and people are highly sensitive to how their acts with another person are interpreted, little girls are encouraged to touch less. I don't really know. I'm hypothesizing. I hope I'm wrong. Such touch, for me, was the only real affection I received between the ages of six through twelve.
As I grew up, I had no interest in dating boys--but they seemed interested in dating me. So I did. And I had boyfriends. And I let them cuddle and kiss because I really, really wanted that. However, it seemed to affect them more deeply than it did me, and after awhile I was finished with that. I wanted nothing more than to be held and loved. The boyfriends definitely weren't satisfied with only that.
Darrin, alone, seemed to understand my need to be touched without strings attached. Granted, he was the first person I told of the sexual and physical abuse in my life, so he understood my background, but it was clear to me that he would allow me to call the shots when it came to our physical interaction--which is one of many reasons that I married him.
And for a long time, Darrin WAS all I needed. He was my most important relationship--my only important relationship. After my children were born, I experienced new levels of relationship depth. Other people came and went. I enjoyed them but had no desire to work to make secure friendships with them. That desire has never been paramount for me. And when they left, I felt a tiny shock of loneliness, then turned immediately to Darrin to appease it.
Unhealthy?
No doubt about it. And I was lonely. I ignored the loneliness and filled my life with other things, other temporary people, other books to read or music to play. I learned new skills and got new jobs and refused to think about loneliness or friends or anything that caused me discomfort. After all, in the end, I had Darrin, and that was all that mattered.
Ten years ago I began to face the things that haunt me. I went to a therapist (or two...or three...or four...and then finally found a good fit in Therapist). I stopped running. I decided to look at the things that scare me. At the top of my list were "People". I told Therapist I was going to learn to have real relationships outside of Darrin and my kids. He looked alarmed and immediately told me that those were my most important relationships. I knew that. I just wanted to see if I could have more--other relationships with other people--relationships that could last longer than a few months or a year.
So I did. And I wrote about it in my blogs. A lot.
Maintaining longterm contact with people was difficult for me, and very stressful. There were many times when I just wanted to cut everyone loose and never see them again. Sometimes I would hide for a week while I collected myself, gathered strength, and decided to keep trying.
I don't expect anyone to understand this. I know of many people who maintain their relationships with no problem or conflict or stress. I'm not one of them. It's hard for me. I'm afraid of people.
In spite of everything, I've had quite a few friendshps that have endured nearly 8 years now. That's a very long time. And I think I can truly say that I did it--we did it. I'm not eternally damaged by abuse and rape and I can be as human as the next person. But what I've noticed in the past year is that my drive to maintain my relationships is waning. I don't love the people less. I still want them. I just don't feel that, should the relationships become less important to all parties concerned, it doesn't say anything about me or my ability to interact with people. And at this point, all of us have spouses--and our spousal relationships are supposed to be the most important.
I guess I'm just feeling that after all is said and done, as close as we've been, as important as I might be (which isn't hugely important, I admit), I'm not really irreplaceable, and should I no longer be in the picture (for whatever reason), everyone still has their spouses, and that's what matters. But Therapist says it's not a black-and-white issue, even though that's what he said at first. And he says part of the reason he feels that way is because in the last decade I've convinced him otherwise. While he still believes that spousal relationships are parmount, there are equally important relationships that serve different purposes which should be nurtured and cherished. And he says I'm really not replaceable.
I don't know that I believe him. I often feel that I'm a convenient diversion. I don't object to being that. But sometimes I would like to feel that I make people's lives better and that they seek me out because I provide something they want and need.
My parents hug me now. It's awkward and I don't like it. They do it because they understood, too late, how hurt I was growing up and they DO love me, and they want to make things right, somehow. They can't--but I let them hug me anyway because it seems to make them feel better. It doesn't make me feel better, but it doesn't hurt me either. I guess that's what I don't want my relationships with other people to become--something they allow to happen because, even if they don't really like it, it doesn't hurt them and it seems to help me. That, in my mind, is not honest or healthy. I want more.
And maybe that's the entire problem expressed in three words. I want more. But maybe "more" is a figment of my imagination. Therapist says it's not, but he also says he was wrong about the importance of non-spousal relationships, and quite frankly, I don't think he knows any more than I do.
Last night I questioned a number of people who are currently present in my life about this topic. They all think I'm delving too deeply and I just need to let life happen and enjoy it. Maybe they're right--but it also illustrates how little they know me.
Okay. I'm done. Time to go to the gym.
Monday, January 20, 2014
I don't watch movies with an R rating.
Some people will suppose that this is because LDS people have been cautioned to use good judgment when choosing what they watch (and R-rated movies have been specifically mentioned as things to avoid), and I am part of that group. But anyone who knows me understands that blind obedience isn't really my style, and it's rare for me to do something simply because I've been told to (or told not to, as the case may be). Imagine having me as a child...yeah...I was a bit obstinate. So I'm not an adherent of the popular saying, "When the prophet speaks, the debate is over." I'm pretty sure I'm an Old Testament candidate for flood victim, wilderness wanderer, or pillar of salt. That's just who I am.
My choice to avoid rated R movies (and some PG-13 movies) was made when I was quite young and I encountered my first triggering violent movie. Television is not the big screen, and I found that my tolerance for violence (especially sexually related violence) went way down when it was large and in my face and I had no control over the volume. I've often said that I don't identify with movies and I'm constantly aware that an actor is playing a role--and I appreciate it when it's done well. But there are times when something triggers a memory, it could be a sight, a sound, or just a situation, and when that happens, I'm no longer watching the movie on the screen but am, instead, a victim of that triggered memory.
I recognized, after a rather unfortunate date, that if the violence in a PG-13 movie could trigger me, probably the degree allowed to be portrayed in an R-rated movie would be lengthier, or more intense, or more frequent, and because I was embarrassed that I left the theater with my date with no idea of what had happened in the movie, I decided I would not put myself in that position again. And I didn't.
My resolve to stay away from R-rated movies was further strengthened when I spent a year living with my outspoken, rather loud, mother-in-law, who declared her undying enthusiasm and enjoyment of slasher movies based on real life (I believe her favorite was Scar Face). I found her need to describe the bloody Hollywood depictions of the horrific crimes, with not a word spoken about the victims or their families, to be ghoulish at best. Mother-in-law was not accepting of my assertion that I just didn't want to watch--so the mormnorm edict became a convenient crutch for my escape when the movies were shown in the evenings, and I was grateful it existed.
It's rare for me to go to a movie theater and choose from the list of available movies. I will almost always research what I wish to see so I know what I'm up against, before deciding whether or not I'll be safe when I view it. It's just a good idea for me.
My reluctance to view films with sex and violence has been misconstrued by many people. And some believe I judge them harshly because they choose to watch movies I do not. I'm often overwhelmed with excuses or explanations of why the movie has merit, in spite of its rating. I'm told that they know we're not "supposed" to watch rated R movies. I'm prodded to just watch it with them and they'll edit out the "bad" parts.
They don't understand. I don't really care what they choose to watch. It changes nothing in my opinion about, or love for, them, any more than knowing that they eat ice cream daily would alter my feelings or opinions. But I am frustrated that they cannot accept my decision not to watch, and I feel a great deal of stress as they attempt to goad or persuade me. They don't know that I feel I am less of a person because my ability to process the types of situations I see on the screen is diminished by the violence I have experienced in my life, and that I am embarrassed and a little bit angry when I have to explain. I feel, instead, that they do not care about my feelings when my quietly spoken, "Maybe we could choose a different movie, please?" is met with resistance and little understanding.
So for future reference, should I decline a movie invitation, please go without me and enjoy yourself. Or if you wish to spend time with me, help me choose a different movie or activity we both can enjoy. Let's just forget for a moment, that there are any religious guidelines that apply to me, and just believe I'm an adult who makes good decisions for myself--because sometimes I do that.
My choice to avoid rated R movies (and some PG-13 movies) was made when I was quite young and I encountered my first triggering violent movie. Television is not the big screen, and I found that my tolerance for violence (especially sexually related violence) went way down when it was large and in my face and I had no control over the volume. I've often said that I don't identify with movies and I'm constantly aware that an actor is playing a role--and I appreciate it when it's done well. But there are times when something triggers a memory, it could be a sight, a sound, or just a situation, and when that happens, I'm no longer watching the movie on the screen but am, instead, a victim of that triggered memory.
I recognized, after a rather unfortunate date, that if the violence in a PG-13 movie could trigger me, probably the degree allowed to be portrayed in an R-rated movie would be lengthier, or more intense, or more frequent, and because I was embarrassed that I left the theater with my date with no idea of what had happened in the movie, I decided I would not put myself in that position again. And I didn't.
My resolve to stay away from R-rated movies was further strengthened when I spent a year living with my outspoken, rather loud, mother-in-law, who declared her undying enthusiasm and enjoyment of slasher movies based on real life (I believe her favorite was Scar Face). I found her need to describe the bloody Hollywood depictions of the horrific crimes, with not a word spoken about the victims or their families, to be ghoulish at best. Mother-in-law was not accepting of my assertion that I just didn't want to watch--so the mormnorm edict became a convenient crutch for my escape when the movies were shown in the evenings, and I was grateful it existed.
It's rare for me to go to a movie theater and choose from the list of available movies. I will almost always research what I wish to see so I know what I'm up against, before deciding whether or not I'll be safe when I view it. It's just a good idea for me.
My reluctance to view films with sex and violence has been misconstrued by many people. And some believe I judge them harshly because they choose to watch movies I do not. I'm often overwhelmed with excuses or explanations of why the movie has merit, in spite of its rating. I'm told that they know we're not "supposed" to watch rated R movies. I'm prodded to just watch it with them and they'll edit out the "bad" parts.
They don't understand. I don't really care what they choose to watch. It changes nothing in my opinion about, or love for, them, any more than knowing that they eat ice cream daily would alter my feelings or opinions. But I am frustrated that they cannot accept my decision not to watch, and I feel a great deal of stress as they attempt to goad or persuade me. They don't know that I feel I am less of a person because my ability to process the types of situations I see on the screen is diminished by the violence I have experienced in my life, and that I am embarrassed and a little bit angry when I have to explain. I feel, instead, that they do not care about my feelings when my quietly spoken, "Maybe we could choose a different movie, please?" is met with resistance and little understanding.
So for future reference, should I decline a movie invitation, please go without me and enjoy yourself. Or if you wish to spend time with me, help me choose a different movie or activity we both can enjoy. Let's just forget for a moment, that there are any religious guidelines that apply to me, and just believe I'm an adult who makes good decisions for myself--because sometimes I do that.
Saturday, January 18, 2014
Marriage--specifically, mixed-orientation marriage
When I began blogging, this was something that greatly interested me. I wanted to find others in MOMs who were happy, as I was--people like me, who somehow, against great odds, had found fulfillment and joy with a partner of the opposite sex. I think this was important to me because my marriage experience was greatly different from opposite sex attracted married people. Maybe I didn't want to be the "only one". I think I wanted dialogue with people who understood my situation. Regardless, the topic was on my mind and I wanted to talk about it.
Once I began speaking, there were quite a few people who entered the conversation. I learned a lot--which was also something I was seeking. To my dismay, I learned that two camps exist on the topic and both of them have strong opinions and speak very loudly. Personally, I have a strong opinion about my own marriage, but I really don't have one about any other marriage. I'll talk about mine, but probably not yours. And I strongly resist joining either of the two camps.
Camp One: Mixed orientation marriage is unnatural and should be avoided (actually, I've heard the words "should not be an option" in the place of "should be avoided" more often than I'd like, and it bothers me because it sort of dictates who one must not marry--in the same way some states' laws do). It will ultimately end in divorce, which is harmful to any offspring, and also to both spouses, emotionally, physically, and mentally. Those who are in MOMs and who attest to successful marriages are being dishonest and their words should be disregarded.
Camp Two: Gay people choose their orientation. They have an agenda (no one's really sure what this agenda is, but certainly it is EVIL and will bring about ARMAGEDDON and the world will die because of it). The only reason they can't change is because they don't want to. If gay people meet the right person of the opposite sex and get married, they'll live happily ever after and never be gay again. Just like Samantha. We use marriages like Samantha's because it proves that gay people are imaginary.
Clearly these are extreme views. I don't really have extreme views about anything. Except, maybe, chocolate. I love it. Extremely.
Over the past decade, I have been approached several times to talk about my marriage and my life in different venues. Those invitations have come from several different sources, not all extreme, and some for very good reasons--reasons I support. However, in making a video, writing a brief essay, participating in a podcast, writing a guest blog, or being interviewed, I understand that once my words become public, they can and will be misconstrued.
People from camp one will mock my marriage, question my honesty and sincerity, accuse me of attention seeking, and wait for my marriage to fail. People from camp two will harm gay family members and friends as they press them to "change" or to date members of the opposite sex, or twist my words to prove that gay people are inherently wrong or evil. I have no interest in providing fodder for either camp.
I believe the majority of people are more moderate and really don't care about me or my marriage. I'm an oddity worthy of three or four seconds of perusal, and that is all. But even without the MOM aspect, my marriage is remarkable. The average length of a first marriage is 8 years. Mine has survived more than 20 years. That's a long time. And I suppose that's what I've been thinking about.
My reasons for finding other MOMs are no longer as important to me. What I've learned is that every marriage is unique and some have greater challenges than others. Being gay has not caused me as much stress, perhaps, as it causes others in MOMs. I've been more challenged by the abuses of my past than by my sexual orientation mix-match of the past two decades.
I've also learned that sexual compatibility can be problematic for anyone, regardless of whether or not they marry a person of the same orientation. Things that seem to guarantee longevity in any relationship are linked to common interests, ability to weather changes and crises, desire to remain in the relationship, willingness to work out disagreements and find common ground, enjoyment of each other's company, and intense interest in each other. Sex is a component of that, naturally, but one that can wax and wane based on age and health. Devotion plays a large part in marriage longevity.
That last paragraph is not advisory. I don't give advice. It's simply a list of observations I've made as I've researched and studied marriages over the past decade--including my own. Darrin and I have had our ups and downs (still do). But I believe, at the core, we both want to spend our lives together--and WANTING is a huge motivator.
So I've said no to the invitations to discuss my marriage in public (with one exception--Darrin and I were once on a panel about mixed orientation marriage, and in that experience I learned that my view differs vastly from views of others who share marriages like mine, and I've not participated again). What I have decided is that it doesn't really matter what people in camp one think about me. I'm happy. I don't believe my children are maladjusted or dysfunctional. In fact, they seem to be intelligent, open-minded, devoid of gender bias, and are some of the most non-judgmental people I've met. I like them very much. I see no reason to expose my marriage to those who will mock it or expect it to fail, and who attribute many of society's woes to people like me. I understand many of them speak from experience--but that is not my experience and I do not expect it ever will be.
And I would never, ever, provide fodder for people in camp two--those who do not respect the right of their gay family members and friends to choose for themselves. That right to choose, I believe, is God-given and irrevocable. Yet the people closest to us are often those who punish or ostracize if we exercise that right to choose and our choice does not align with what they wish for us. The hurt that springs from such pressure to conform, and the damage to the soul and psyche, are often irreparable and always avoidable. I do not need my marriage to become a bludgeoning instrument for those who think they can "make" someone believe, or choose, or become. That right to believe/choose/become belongs to the individual, not to the masses.
Which leaves me at the end of this train of thought. My decision to silently live and love my spouse, for me, is the right one. It does not nullify the importance of voices like my friend, Josh, who chose to tell the world about his experience with mixed orientation marriage. I support and applaud him. I believe he did what was right for him, and helpful for many people. As can be expected, the extremists used his words, and some people were hurt by them--but this was not, and never has been, Josh's intent. I believe he has a right to speak, even if there are those who object to or misinterpret what he says. But I also have a right to remain silent, which has a reflection only on me.
Once I began speaking, there were quite a few people who entered the conversation. I learned a lot--which was also something I was seeking. To my dismay, I learned that two camps exist on the topic and both of them have strong opinions and speak very loudly. Personally, I have a strong opinion about my own marriage, but I really don't have one about any other marriage. I'll talk about mine, but probably not yours. And I strongly resist joining either of the two camps.
Camp One: Mixed orientation marriage is unnatural and should be avoided (actually, I've heard the words "should not be an option" in the place of "should be avoided" more often than I'd like, and it bothers me because it sort of dictates who one must not marry--in the same way some states' laws do). It will ultimately end in divorce, which is harmful to any offspring, and also to both spouses, emotionally, physically, and mentally. Those who are in MOMs and who attest to successful marriages are being dishonest and their words should be disregarded.
Camp Two: Gay people choose their orientation. They have an agenda (no one's really sure what this agenda is, but certainly it is EVIL and will bring about ARMAGEDDON and the world will die because of it). The only reason they can't change is because they don't want to. If gay people meet the right person of the opposite sex and get married, they'll live happily ever after and never be gay again. Just like Samantha. We use marriages like Samantha's because it proves that gay people are imaginary.
Clearly these are extreme views. I don't really have extreme views about anything. Except, maybe, chocolate. I love it. Extremely.
Over the past decade, I have been approached several times to talk about my marriage and my life in different venues. Those invitations have come from several different sources, not all extreme, and some for very good reasons--reasons I support. However, in making a video, writing a brief essay, participating in a podcast, writing a guest blog, or being interviewed, I understand that once my words become public, they can and will be misconstrued.
People from camp one will mock my marriage, question my honesty and sincerity, accuse me of attention seeking, and wait for my marriage to fail. People from camp two will harm gay family members and friends as they press them to "change" or to date members of the opposite sex, or twist my words to prove that gay people are inherently wrong or evil. I have no interest in providing fodder for either camp.
I believe the majority of people are more moderate and really don't care about me or my marriage. I'm an oddity worthy of three or four seconds of perusal, and that is all. But even without the MOM aspect, my marriage is remarkable. The average length of a first marriage is 8 years. Mine has survived more than 20 years. That's a long time. And I suppose that's what I've been thinking about.
My reasons for finding other MOMs are no longer as important to me. What I've learned is that every marriage is unique and some have greater challenges than others. Being gay has not caused me as much stress, perhaps, as it causes others in MOMs. I've been more challenged by the abuses of my past than by my sexual orientation mix-match of the past two decades.
I've also learned that sexual compatibility can be problematic for anyone, regardless of whether or not they marry a person of the same orientation. Things that seem to guarantee longevity in any relationship are linked to common interests, ability to weather changes and crises, desire to remain in the relationship, willingness to work out disagreements and find common ground, enjoyment of each other's company, and intense interest in each other. Sex is a component of that, naturally, but one that can wax and wane based on age and health. Devotion plays a large part in marriage longevity.
That last paragraph is not advisory. I don't give advice. It's simply a list of observations I've made as I've researched and studied marriages over the past decade--including my own. Darrin and I have had our ups and downs (still do). But I believe, at the core, we both want to spend our lives together--and WANTING is a huge motivator.
So I've said no to the invitations to discuss my marriage in public (with one exception--Darrin and I were once on a panel about mixed orientation marriage, and in that experience I learned that my view differs vastly from views of others who share marriages like mine, and I've not participated again). What I have decided is that it doesn't really matter what people in camp one think about me. I'm happy. I don't believe my children are maladjusted or dysfunctional. In fact, they seem to be intelligent, open-minded, devoid of gender bias, and are some of the most non-judgmental people I've met. I like them very much. I see no reason to expose my marriage to those who will mock it or expect it to fail, and who attribute many of society's woes to people like me. I understand many of them speak from experience--but that is not my experience and I do not expect it ever will be.
And I would never, ever, provide fodder for people in camp two--those who do not respect the right of their gay family members and friends to choose for themselves. That right to choose, I believe, is God-given and irrevocable. Yet the people closest to us are often those who punish or ostracize if we exercise that right to choose and our choice does not align with what they wish for us. The hurt that springs from such pressure to conform, and the damage to the soul and psyche, are often irreparable and always avoidable. I do not need my marriage to become a bludgeoning instrument for those who think they can "make" someone believe, or choose, or become. That right to believe/choose/become belongs to the individual, not to the masses.
Which leaves me at the end of this train of thought. My decision to silently live and love my spouse, for me, is the right one. It does not nullify the importance of voices like my friend, Josh, who chose to tell the world about his experience with mixed orientation marriage. I support and applaud him. I believe he did what was right for him, and helpful for many people. As can be expected, the extremists used his words, and some people were hurt by them--but this was not, and never has been, Josh's intent. I believe he has a right to speak, even if there are those who object to or misinterpret what he says. But I also have a right to remain silent, which has a reflection only on me.
Sunday, December 29, 2013
The solstice was December 21st--the darkest day of the year has past.
My reaction to my situation has been of interest to me. Prior to my "death sentence" diagnosis, when I felt pain in my hip I would think: "This hurts, but it's going to get better. I just need to do my physical therapy exercises and keep working on flexibility. This is not forever." After the diagnosis, when I felt pain I would panic and think: "My bone is dead! There is nothing I can do about it! It has to be CUT OUT!!!" This would be followed by horrible sadness after which I would remind myself that I'm not dying and this is a condition which can be remedied (even if the remedy was not what I wanted).
The "interesting" part of all this is that my pain tolerance decreased considerably as I realized I was not going to get better. My general feeling of helplessness increased. My desire to withdraw and cease interaction with people became overwhelming.
The doctor didn't tell me to stop going to the gym. He told me continuing to build the muscles surrounding the bone would be beneficial if I could tolerate the movement of bone on bone in my hip. He made no recommendations for treatment in the interim between now and when the hip would be replaced, preferring to wait for the MRI results so he would have more information before making such recommendations.
My depression increased as my ability to manage pain became nonexistent. In only a few days, I had come to view myself as disabled and old. Random crying was part of every waking hour. Sleep was miserable.
Christmas morning was rather lovely. Around 4 a.m., I got up and did some online work while my family slept. DJ, who has never been able to sleep well on Christmas Eve, finally decided everyone had been asleep long enough and woke everyone at 8:30. We opened gifts, made breakfast, and settled into a game of Monopoly.
My mother had invited us to Christmas dinner. I was trying not to be unpleasant about another Thanksgiving-like turkey dinner--but I have my limits. As I provided most of the dinner for Thanksgiving and grocery shopping had been sparse prior to Christmas day, I chose not to volunteer food or help for Christmas dinner. I know--that was unkind--but I was feeling miserable and I didn't care.
We arrived at my parents' house around 2:00. I visited with my family (parents, brother and family, grandmother), but was feeling increasingly ill. Finally, after 30 minutes, I said I needed to go home. My father, who has experienced the pain of bone against bone movement (he has post-polio syndrome, which causes cartilage to decrease and bones to wear out), sent me home with two of the very potent, prescription pills he takes to manage pain. Legality sometimes takes a back seat to helping a loved one in distress, I suppose.
I went home and fell asleep on what we fondly call "The Napping Couch". When I awoke, I felt better, but still nauseated and in pain. I thought about taking one of my dad's pills, but opted for an OTC pain killer instead. I didn't want drug-induced sleep for the rest of Christmas day.
I read a book. I cleaned my kitchen. I watched the sun set. And I thought about a lot of things.
I decided that until I'm told I cannot, I will continue to work out as I have been. I feel better both during and afterward, so I don't believe I'm hurting myself, and I'm using and building the muscles that will help with recovery after surgery.
I decided I'm not going to feel sorry for myself anymore. It has its place, but I've allowed it enough time. At this point, it's just making me more miserable.
I decided to start researching and looking at my options, finding information about the things I'm facing, and learning about what's happening to my body so I can prepare for my future and cope with my present.
I decided I should probably talk to Therapist.
Thursday I went to the gym for the first time in nearly a week. I lifted weights, ran on the elliptical, and sat in the jacuzzi. There was some discomfort, but the benefit was worth it.
Friday I talked with Therapist. He had some good things to tell me and felt suitably sympathetic toward my situation. He thanked me for talking with him--said I'm a "bright spot" in his life. That was nice to hear. I don't feel very bright right now.
Yesterday, I filled out an application for an appointment to see a doctor who specializes in Birmingham hip resurfacing procedures, which is basically a hip replacement for runners. The procedure is about a decade old and has had fairly good results. I didn't think I would be a candidate for this, but when I went to the website and found it was recommended for "young" people--and realized I'm not even old enough to be considered a "young hip replacement candidate" (young = people in their 50s and 60s), I decided I needed to look into this. I'm really not ready to stop running.
The MRI will determine my eligibility based on the extent of bone death and condition of the remaining bone. I'm encouraged by the fact that avascular necrosis was listed with the conditions that are considered for this joint replacement. I have nothing to lose. If I'm told I can't have the joint replacement I want, I'll get the total hip replacement and plan on a few more before I die. I'll find something else to love. I'll be okay.
In the meantime, my emotions are all over the place and I don't want to be with people at all. I telephoned someone on Christmas day, because I knew the desire to isolate was becoming unmanageable, but I've not been able to talk to anyone since then. I've made attempts, but my ability to follow through is gone, so if I'm not met halfway, it's probable that the attempt will die. I just don't feel able to pursue anyone right now, to insist on attention--and doing so makes me feel unwanted and annoying. I'm not excited about placing myself in that position, so I probably won't.
But I'll keep going to the gym, and I should have MRI answers next week, and I'll see the hip specialist as soon as I can. Therapist said it's best if I keep talking to people, but if I have to chase them down, I would be better off using my energy for more pressing things--like staying sane, and managing pain and depression. I think he's right.
In the meantime, if you come visit me, I'll play you some Debussy. I learned a couple of his pieces to give away as Christmas gifts, but was unable to do so--so I've been giving them to anyone who chances by. They seem to be happy to listen for a few minutes. One sweet friend said it was "transcendent" but she adores Debussy, so that's to be expected. I won't be able to play for a few months after my hip replacement, so I'm performing as much as I can right now.
The "interesting" part of all this is that my pain tolerance decreased considerably as I realized I was not going to get better. My general feeling of helplessness increased. My desire to withdraw and cease interaction with people became overwhelming.
The doctor didn't tell me to stop going to the gym. He told me continuing to build the muscles surrounding the bone would be beneficial if I could tolerate the movement of bone on bone in my hip. He made no recommendations for treatment in the interim between now and when the hip would be replaced, preferring to wait for the MRI results so he would have more information before making such recommendations.
My depression increased as my ability to manage pain became nonexistent. In only a few days, I had come to view myself as disabled and old. Random crying was part of every waking hour. Sleep was miserable.
Christmas morning was rather lovely. Around 4 a.m., I got up and did some online work while my family slept. DJ, who has never been able to sleep well on Christmas Eve, finally decided everyone had been asleep long enough and woke everyone at 8:30. We opened gifts, made breakfast, and settled into a game of Monopoly.
My mother had invited us to Christmas dinner. I was trying not to be unpleasant about another Thanksgiving-like turkey dinner--but I have my limits. As I provided most of the dinner for Thanksgiving and grocery shopping had been sparse prior to Christmas day, I chose not to volunteer food or help for Christmas dinner. I know--that was unkind--but I was feeling miserable and I didn't care.
We arrived at my parents' house around 2:00. I visited with my family (parents, brother and family, grandmother), but was feeling increasingly ill. Finally, after 30 minutes, I said I needed to go home. My father, who has experienced the pain of bone against bone movement (he has post-polio syndrome, which causes cartilage to decrease and bones to wear out), sent me home with two of the very potent, prescription pills he takes to manage pain. Legality sometimes takes a back seat to helping a loved one in distress, I suppose.
I went home and fell asleep on what we fondly call "The Napping Couch". When I awoke, I felt better, but still nauseated and in pain. I thought about taking one of my dad's pills, but opted for an OTC pain killer instead. I didn't want drug-induced sleep for the rest of Christmas day.
I read a book. I cleaned my kitchen. I watched the sun set. And I thought about a lot of things.
I decided that until I'm told I cannot, I will continue to work out as I have been. I feel better both during and afterward, so I don't believe I'm hurting myself, and I'm using and building the muscles that will help with recovery after surgery.
I decided I'm not going to feel sorry for myself anymore. It has its place, but I've allowed it enough time. At this point, it's just making me more miserable.
I decided to start researching and looking at my options, finding information about the things I'm facing, and learning about what's happening to my body so I can prepare for my future and cope with my present.
I decided I should probably talk to Therapist.
Thursday I went to the gym for the first time in nearly a week. I lifted weights, ran on the elliptical, and sat in the jacuzzi. There was some discomfort, but the benefit was worth it.
Friday I talked with Therapist. He had some good things to tell me and felt suitably sympathetic toward my situation. He thanked me for talking with him--said I'm a "bright spot" in his life. That was nice to hear. I don't feel very bright right now.
Yesterday, I filled out an application for an appointment to see a doctor who specializes in Birmingham hip resurfacing procedures, which is basically a hip replacement for runners. The procedure is about a decade old and has had fairly good results. I didn't think I would be a candidate for this, but when I went to the website and found it was recommended for "young" people--and realized I'm not even old enough to be considered a "young hip replacement candidate" (young = people in their 50s and 60s), I decided I needed to look into this. I'm really not ready to stop running.
The MRI will determine my eligibility based on the extent of bone death and condition of the remaining bone. I'm encouraged by the fact that avascular necrosis was listed with the conditions that are considered for this joint replacement. I have nothing to lose. If I'm told I can't have the joint replacement I want, I'll get the total hip replacement and plan on a few more before I die. I'll find something else to love. I'll be okay.
In the meantime, my emotions are all over the place and I don't want to be with people at all. I telephoned someone on Christmas day, because I knew the desire to isolate was becoming unmanageable, but I've not been able to talk to anyone since then. I've made attempts, but my ability to follow through is gone, so if I'm not met halfway, it's probable that the attempt will die. I just don't feel able to pursue anyone right now, to insist on attention--and doing so makes me feel unwanted and annoying. I'm not excited about placing myself in that position, so I probably won't.
But I'll keep going to the gym, and I should have MRI answers next week, and I'll see the hip specialist as soon as I can. Therapist said it's best if I keep talking to people, but if I have to chase them down, I would be better off using my energy for more pressing things--like staying sane, and managing pain and depression. I think he's right.
In the meantime, if you come visit me, I'll play you some Debussy. I learned a couple of his pieces to give away as Christmas gifts, but was unable to do so--so I've been giving them to anyone who chances by. They seem to be happy to listen for a few minutes. One sweet friend said it was "transcendent" but she adores Debussy, so that's to be expected. I won't be able to play for a few months after my hip replacement, so I'm performing as much as I can right now.
Monday, December 23, 2013
Avascular Necrosis
About a month ago I noticed that the pain in my tendon was becoming pain in my outer hip and the muscles in my thigh and backside were in spasm almost constantly. I was losing mobility in my joint. When I stepped on my right leg, or shifted my weight from side to side, there was audible popping in my hip. But most importantly, I was sleeping very little at night when the pain would intensify to the point that I could barely tolerate it.
So I made an appointment to see a sports medicine surgeon, thinking that it was time to get that tendon release and just get better--and why not see a doctor who would do the surgery and get me right back into running?
I saw him Friday. There were x-rays and a brief exam and a diagnosis. Then I went to the parking lot and cried for 20 minutes before I went home.
I'm not going to run again. I don't have tendonitis. I have avascular necrosis. Translation: the bones in my hip and upper thigh, and all the surrounding tissue and cartilage, have died.
This is a condition usually contracted by the following:
-Men between the ages of 30 and 60 years old
-People with sickle cell anemia, AIDS/HIV, lupus, diabetes, or Gaucher's disease
-People who drink alcohol excessively
-People who take steroids or osteoporosis drugs
-People who have had dialysis, or organ transplants, or who have undergone radiation therapy for cancer
As you can see from the list, I am not part of the "at risk" group. My doctor kept saying, "This is really, really bad!" and "I've never had a female patient as young as you who has contracted this!" After about the fourth repetition of those statements (with variations), I said, "Stop saying those things--you're making me really stressed!"
Then I learned that:
-There is no cure
-I no longer have any tissue between the ball and socket of my hip (bone on bone)--hence the loud popping sound, loss of movement, and intense pain
-I'm at risk for stress fractures, hip fracture, and eventual bone collapse
So I'll be having an MRI as soon as possible to determine the extent of the bone death and rule out bone cancer, and then a total hip replacement--with at least two more to look forward to in my future, as I am "so young!" Yay.
It's not the worst thing that could happen. And when I have a new hip I can still bike or swim or even play tennis. And the pain will be significantly less. But it's not the answer I wanted. And sometimes when I think about the moments when I would push through that threshold--the one where my breath comes in ragged gasps and I'm feeling like I might die if I run one more step--to the place where rhythm kicks in and I feel stronger with every breath and I'm absolutely certain I can run forever...well, it makes me sad.
Until two years ago I had run nearly every day of my life. I miss it. And sometimes, on warm spring days, the butterflies would circle and keep pace with me, and wildflowers covered the entire prairie, and in the summer I watched baby hawks learn to fly, or antelope running in front of me, or listened as breezes whispered through long prairie grass.
Everything will be fine. I'll get a new hip. I'll be free from pain. I'll still be me. But there won't be anymore running with butterflies, and part of me--right now a very large part of me--can't seem to stop feeling sad about that.
So I made an appointment to see a sports medicine surgeon, thinking that it was time to get that tendon release and just get better--and why not see a doctor who would do the surgery and get me right back into running?
I saw him Friday. There were x-rays and a brief exam and a diagnosis. Then I went to the parking lot and cried for 20 minutes before I went home.
I'm not going to run again. I don't have tendonitis. I have avascular necrosis. Translation: the bones in my hip and upper thigh, and all the surrounding tissue and cartilage, have died.
This is a condition usually contracted by the following:
-Men between the ages of 30 and 60 years old
-People with sickle cell anemia, AIDS/HIV, lupus, diabetes, or Gaucher's disease
-People who drink alcohol excessively
-People who take steroids or osteoporosis drugs
-People who have had dialysis, or organ transplants, or who have undergone radiation therapy for cancer
As you can see from the list, I am not part of the "at risk" group. My doctor kept saying, "This is really, really bad!" and "I've never had a female patient as young as you who has contracted this!" After about the fourth repetition of those statements (with variations), I said, "Stop saying those things--you're making me really stressed!"
Then I learned that:
-There is no cure
-I no longer have any tissue between the ball and socket of my hip (bone on bone)--hence the loud popping sound, loss of movement, and intense pain
-I'm at risk for stress fractures, hip fracture, and eventual bone collapse
So I'll be having an MRI as soon as possible to determine the extent of the bone death and rule out bone cancer, and then a total hip replacement--with at least two more to look forward to in my future, as I am "so young!" Yay.
It's not the worst thing that could happen. And when I have a new hip I can still bike or swim or even play tennis. And the pain will be significantly less. But it's not the answer I wanted. And sometimes when I think about the moments when I would push through that threshold--the one where my breath comes in ragged gasps and I'm feeling like I might die if I run one more step--to the place where rhythm kicks in and I feel stronger with every breath and I'm absolutely certain I can run forever...well, it makes me sad.
Until two years ago I had run nearly every day of my life. I miss it. And sometimes, on warm spring days, the butterflies would circle and keep pace with me, and wildflowers covered the entire prairie, and in the summer I watched baby hawks learn to fly, or antelope running in front of me, or listened as breezes whispered through long prairie grass.
Everything will be fine. I'll get a new hip. I'll be free from pain. I'll still be me. But there won't be anymore running with butterflies, and part of me--right now a very large part of me--can't seem to stop feeling sad about that.
Tuesday, December 17, 2013
Getting It
So I wrote a post not long ago, about finally understanding how human sociality works; how it's possible to love someone deeply and wish to spend a great deal of time with him or her, but a few years later the novelty has worn off and one has moved on to another person (also deeply loved and interesting, of course). And I do understand.
I am not a stupid person, so it's likely that I always understood, I just didn't want to. I am also a stubborn person.
(I am eating a bagel with sesame seeds which keep dropping into my keyboard as I write this. While I'm not happy with the situation, I'll probably keep eating the bagel.)
My social pattern, until about eight years ago, was to charm people, enjoy their company, build a circle of those I could call or invite to lunch, but never divulge information about the person inside me. Ever. And should one of those people get close to me, I would simply become very busy, avoid contact, and wait until they lost interest. And they always did.
When I actually allowed people into my life--complete strangers, many of whom I met online--and bonded with some of them, it was dreadful. I felt exposed and afraid all the time. ALL THE TIME.
I thought it was because I knew they were just going to use me up and then leave. But there was more.
My experience has always been that when I love someone deeply (Darrin excepted), eventually they leave. And while I'd like to be the person who can shrug it off and go find someone else, that really isn't how I'm built. And so I knew from the start that any lasting relationship/friendship/companionship/whatever that I became involved in, would change. That's to be expected--even anticipated, sometimes.
However, there is a feeling I've been getting, of late. I am familiar, predictable, no longer scintillating company. There are just too many other people in the lives of people I love who are more....everything. They're funnier and warmer and more beautiful and smarter and just MORE.
Truthfully, they're not. However, they're not "old" friends. They're undiscovered territory and that's compelling and interesting. I have become the book that has been reread enough times that it's no longer good for anything but nostalgia.
In a perfect world, I would be making my own new friends so that when I become a nostalgic memory, I'll have buddies to spend time with. I don't work that way.
I rarely tire of the people I love. There is always something new and beautiful about them just waiting for my discovery. Always. So when I become hackneyed to the other person, I'm still finding out more about them, still getting to know them, still fascinated by what I'll discover next. Clearly, I'm a little slow when it comes to social development. Either that or I'm a great deal less complex than the people I know and it takes less time to discover everything about me.
Tolkien Boy once told me that real relationships were worth fighting for. I think he meant that. But I'm not really a fighter when it comes to making sure someone continues to care about me. And while I've often said there should be rules about how relationships work and how people love each other, I didn't really believe it. What I believe is that in any relationship each person should be absolutely free to authentically act as they see fit. So if that means I watch as someone walks away, or wish for visits and phone calls that aren't going to come because I'm no longer a priority, that's probably exactly what I will allow to happen.
It doesn't mean I won't resent it. And sometimes I might cry a little, just because that's what you do when you miss someone. And probably I'll call or email or try to make sure the other person understands I still want them. And maybe sometimes, when I'm feeling weak, I might think it's not fair. But in the end, I don't fight. I never have. And I'll watch whatever happens--then I'll read a book, or practice, or work, or clean my house. Because that's what I do. And besides, I know the contact with that person isn't ending--it's just becoming more spaced out. They still care--just not as deeply and not as often.
It's not a tragedy. It's my personal inconvenience. I was built a little differently...not that there's anything wrong with that...
(A more pressing problem is that I think it's time to clean the sesame seeds from my keyboard and I'm not quite sure how to do that.)
I am not a stupid person, so it's likely that I always understood, I just didn't want to. I am also a stubborn person.
(I am eating a bagel with sesame seeds which keep dropping into my keyboard as I write this. While I'm not happy with the situation, I'll probably keep eating the bagel.)
My social pattern, until about eight years ago, was to charm people, enjoy their company, build a circle of those I could call or invite to lunch, but never divulge information about the person inside me. Ever. And should one of those people get close to me, I would simply become very busy, avoid contact, and wait until they lost interest. And they always did.
When I actually allowed people into my life--complete strangers, many of whom I met online--and bonded with some of them, it was dreadful. I felt exposed and afraid all the time. ALL THE TIME.
I thought it was because I knew they were just going to use me up and then leave. But there was more.
My experience has always been that when I love someone deeply (Darrin excepted), eventually they leave. And while I'd like to be the person who can shrug it off and go find someone else, that really isn't how I'm built. And so I knew from the start that any lasting relationship/friendship/companionship/whatever that I became involved in, would change. That's to be expected--even anticipated, sometimes.
However, there is a feeling I've been getting, of late. I am familiar, predictable, no longer scintillating company. There are just too many other people in the lives of people I love who are more....everything. They're funnier and warmer and more beautiful and smarter and just MORE.
Truthfully, they're not. However, they're not "old" friends. They're undiscovered territory and that's compelling and interesting. I have become the book that has been reread enough times that it's no longer good for anything but nostalgia.
In a perfect world, I would be making my own new friends so that when I become a nostalgic memory, I'll have buddies to spend time with. I don't work that way.
I rarely tire of the people I love. There is always something new and beautiful about them just waiting for my discovery. Always. So when I become hackneyed to the other person, I'm still finding out more about them, still getting to know them, still fascinated by what I'll discover next. Clearly, I'm a little slow when it comes to social development. Either that or I'm a great deal less complex than the people I know and it takes less time to discover everything about me.
Tolkien Boy once told me that real relationships were worth fighting for. I think he meant that. But I'm not really a fighter when it comes to making sure someone continues to care about me. And while I've often said there should be rules about how relationships work and how people love each other, I didn't really believe it. What I believe is that in any relationship each person should be absolutely free to authentically act as they see fit. So if that means I watch as someone walks away, or wish for visits and phone calls that aren't going to come because I'm no longer a priority, that's probably exactly what I will allow to happen.
It doesn't mean I won't resent it. And sometimes I might cry a little, just because that's what you do when you miss someone. And probably I'll call or email or try to make sure the other person understands I still want them. And maybe sometimes, when I'm feeling weak, I might think it's not fair. But in the end, I don't fight. I never have. And I'll watch whatever happens--then I'll read a book, or practice, or work, or clean my house. Because that's what I do. And besides, I know the contact with that person isn't ending--it's just becoming more spaced out. They still care--just not as deeply and not as often.
It's not a tragedy. It's my personal inconvenience. I was built a little differently...not that there's anything wrong with that...
(A more pressing problem is that I think it's time to clean the sesame seeds from my keyboard and I'm not quite sure how to do that.)
Sunday, December 15, 2013
It's beginning to look a little like Christmas.
Yesterday:
1. I finished grading my last final.
2. I began working on the 18 credits of continuing education the IRS requires of me if I wish to continue preparing tax returns professionally. Yes, I've had all year to work on it. Yes, it's due December 31st.
3. I called four friends. They didn't answer, but I did it, so I'm counting it.
4. I paid bills.
5. I went shopping.
6. While I was shopping my Christmas tree fell over. I'm not saying whether or not I took a long time shopping so Darrin would have to clean it up.
7. I made grilled baby Swiss and tomato pesto sandwiches for dinner. No one wanted one except me, so it was only my dinner. It was delicious.
8. I sang. All day. Out loud, in my head, and in my heart.
9. I picked the pansies that chose to bloom after 10 days of below zero weather (below zero ALL DAY LONG!) and put them in a vase because they're just going to freeze when the weather turns cold again. Besides, I think they like being with me in my warm house while I sing and Darrin cleans up the fallen Christmas tree.
10. I made Christmas treats. You should come share them with me.
1. I finished grading my last final.
2. I began working on the 18 credits of continuing education the IRS requires of me if I wish to continue preparing tax returns professionally. Yes, I've had all year to work on it. Yes, it's due December 31st.
3. I called four friends. They didn't answer, but I did it, so I'm counting it.
4. I paid bills.
5. I went shopping.
6. While I was shopping my Christmas tree fell over. I'm not saying whether or not I took a long time shopping so Darrin would have to clean it up.
7. I made grilled baby Swiss and tomato pesto sandwiches for dinner. No one wanted one except me, so it was only my dinner. It was delicious.
8. I sang. All day. Out loud, in my head, and in my heart.
9. I picked the pansies that chose to bloom after 10 days of below zero weather (below zero ALL DAY LONG!) and put them in a vase because they're just going to freeze when the weather turns cold again. Besides, I think they like being with me in my warm house while I sing and Darrin cleans up the fallen Christmas tree.
10. I made Christmas treats. You should come share them with me.
Sunday, December 8, 2013
Today I will decorate for Christmas.
The past four years I have been too tired to do anything except find the boxes where we store ornaments, tinsel, wrapping paper, lights, and decorations. Any actual decorating was done by Darrin and the kids. Last year Adam decided to rearrange my storage area, so finding anything was an adventure. I found the bare necessities for Christmas and left everything else hidden. I think this year I will dig through his stacks of whatever-we-are-storing-but-don't-really-need until I find all four (or six) boxes of Christmas. Perhaps it's time to rid myself of some of it, but the rest will be displayed for the month of December.
Darrin and I had a long talk yesterday. He's concerned because I am still a shell. There are emerging traits of what make me Samantha, but they come and go, and I seem jaded about everything. Darrin mentioned how I used to love talking on the phone with friends, visiting them, spending time with my kids. He talked about how I would get so excited about a sunset that I would prod and nag until he finally came upstairs to watch it with me. He remembers that I used to giggle all the time, that when I walked in a room everyone noticed because I couldn't stop smiling. He said, "Do you remember when you would go to Walmart--not because you needed anything, but just because you wanted to see how many people would smile back at you?"
Yes. I remember. I remember feeling anticipation and excitement and pure joy. But those aren't things you can just make happen. They're sort of spontaneous and unpredictable.
Darrin says I'm still tired. I've not recovered. I suppose he's right, but recuperation seems to be more work than staying tired--which makes no sense at all.
I taught my last class of the semester on Thursday. This was a lovely group of students. The majority of them worked very hard, but more than that, they were engaged and participating in class. Many of them would mention that they were learning things, that they loved my class--two students have changed their majors and will be pursuing pedagogy degrees because of the things they discovered abut themselves during my class. It's kind of a teacher's dream to be able to help a student find where he or she excels. I feel a tiny bit of delight about this--but three years ago I would have been ecstatic. I'm pretty sure I wouldn't be able to stop talking about it. I'd be energized and happy to write the necessary recommendations as those students applied to different programs, and I'd probably follow up with them.
One student needed my help to make some recordings for her audition. I coached her, and rehearsed with her, and stayed seven hours until the recordings were complete. She had done well and she knew it. Exultantly, she turned to me and thanked me for my help. She wanted a hug. I knew this. I congratulated her, smiled my best, and walked away without hugging. I was just too tired. Hugging felt like a huge effort I was unable to make.
I played a short recital on Friday--arrangements of Christmas music I refer to as "trash with flash". But even though I disparage the music, I've always loved it--loved playing it. My millions of years of practice and training slipped into place and I performed very well. An audience member told me afterward that she loves hearing me play; that this particular recital of beloved Christmas music brought tears to her eyes. I thanked her, but I felt a bit of resentment. It's been a long time since I've felt moved by music.
And so I am doing a Christmas experiment. I don't k now if I'll be able to finish, because the time is growing short, but I am learning a piece I heard many years ago; one whose beauty left me breathless. I'm aware that what I connect with is usually not what others would find beautiful, but should the piece be finished on time, it will be my gift to some of my loved ones. I'm also aware that they would probably rather have something tangible, but this will never break, or be the wrong color, or one day be used up and discarded. It might disappear, depending on the interest and memory of the recipient, but that's up to him or her.
I am doing this because I need to value who I am and what I can do. I have begun to play by rote, because it is easy. I need to remember that I was given a gift, one I can share, and no one in the world can play as I do, because they are not me.
For Darrin, for my children, for everyone who cares about me--but mostly for me--I am going to rediscover what makes me amazing. And I'm going to share it. It's time to recover Samantha.
Darrin and I had a long talk yesterday. He's concerned because I am still a shell. There are emerging traits of what make me Samantha, but they come and go, and I seem jaded about everything. Darrin mentioned how I used to love talking on the phone with friends, visiting them, spending time with my kids. He talked about how I would get so excited about a sunset that I would prod and nag until he finally came upstairs to watch it with me. He remembers that I used to giggle all the time, that when I walked in a room everyone noticed because I couldn't stop smiling. He said, "Do you remember when you would go to Walmart--not because you needed anything, but just because you wanted to see how many people would smile back at you?"
Yes. I remember. I remember feeling anticipation and excitement and pure joy. But those aren't things you can just make happen. They're sort of spontaneous and unpredictable.
Darrin says I'm still tired. I've not recovered. I suppose he's right, but recuperation seems to be more work than staying tired--which makes no sense at all.
I taught my last class of the semester on Thursday. This was a lovely group of students. The majority of them worked very hard, but more than that, they were engaged and participating in class. Many of them would mention that they were learning things, that they loved my class--two students have changed their majors and will be pursuing pedagogy degrees because of the things they discovered abut themselves during my class. It's kind of a teacher's dream to be able to help a student find where he or she excels. I feel a tiny bit of delight about this--but three years ago I would have been ecstatic. I'm pretty sure I wouldn't be able to stop talking about it. I'd be energized and happy to write the necessary recommendations as those students applied to different programs, and I'd probably follow up with them.
One student needed my help to make some recordings for her audition. I coached her, and rehearsed with her, and stayed seven hours until the recordings were complete. She had done well and she knew it. Exultantly, she turned to me and thanked me for my help. She wanted a hug. I knew this. I congratulated her, smiled my best, and walked away without hugging. I was just too tired. Hugging felt like a huge effort I was unable to make.
I played a short recital on Friday--arrangements of Christmas music I refer to as "trash with flash". But even though I disparage the music, I've always loved it--loved playing it. My millions of years of practice and training slipped into place and I performed very well. An audience member told me afterward that she loves hearing me play; that this particular recital of beloved Christmas music brought tears to her eyes. I thanked her, but I felt a bit of resentment. It's been a long time since I've felt moved by music.
And so I am doing a Christmas experiment. I don't k now if I'll be able to finish, because the time is growing short, but I am learning a piece I heard many years ago; one whose beauty left me breathless. I'm aware that what I connect with is usually not what others would find beautiful, but should the piece be finished on time, it will be my gift to some of my loved ones. I'm also aware that they would probably rather have something tangible, but this will never break, or be the wrong color, or one day be used up and discarded. It might disappear, depending on the interest and memory of the recipient, but that's up to him or her.
I am doing this because I need to value who I am and what I can do. I have begun to play by rote, because it is easy. I need to remember that I was given a gift, one I can share, and no one in the world can play as I do, because they are not me.
For Darrin, for my children, for everyone who cares about me--but mostly for me--I am going to rediscover what makes me amazing. And I'm going to share it. It's time to recover Samantha.
Saturday, November 30, 2013
Relationships
I hesitate to write this post--especially after the things I said less than a month ago in this post.
However, it's important to me that I am honest, and in my blog is where I put the uncomfortable truths that many people (including myself) do not wish to hear me speak. So I am writing this with the caveat that at any time I might rescind the words.
I understand.
I know why relationships wax/wane/disappear.
I don't have a lot to say about this, except it doesn't make me want to scream anymore. I think the most important thing is that I'm okay with the system and it's all right if people maintain shoestring relationships, meet intermittently, and feel happy about their interaction. People weren't meant to be integral parts of the lives of lots of people. Children grow up and leave, friends find other friends, sometimes married people choose to divorce and marry other people. That's just life.
I think I believed there was something about people not staying that said something about me--I wasn't good enough, or entertaining enough, or loving enough, or maybe, just not enough at all. It doesn't, though. The process of moving through people doesn't really say anything about me at all, except that maybe I'm human, too.
There are still people I want to have in my life. I would choose them daily. But I'm no longer terrified that I'll watch them move away from me and wonder why. And if they do, I'm pretty sure I'll be okay with letting them decide how frequently they contact me.
My stress about this came, I believe, because I allowed myself to have close relationships with people other than Darrin. I had never done that before. I told people things about me; I shared my loves and peeves and joys and sorrows. And then I became afraid that I had shared a part of me that would be discarded or mocked, or that I assumed someone would care when really they were just mildly curious. Yes, this is a reflection of my childhood.
But I think what has happened is that I'm recognizing that what I have to give has value, if only to me. It's up to the recipient what happens next. And if what I've given is disregarded or belittled, that's not my problem. I chose unwisely and I can learn from my mistakes.
I think there are lots of people who love other people in varying degrees. Their interest in those people has longevity based on the depth and reciprocation of that love. People are complicated. Lives can be complicated. Sometimes things like stress, or family problems, or physical/mental illness cause rifts that can't be bridged. It's a loss we mourn and then move forward. It seems to be the only healthy way to interact with people because no one wants to stay in a relationship because they feel threatened or compelled to do so. They want to be there because the person makes their lives feel better in many different ways.
That's all, I guess. I understand. Finally.
But just so you know, I still don't like it. I also understand that because of my nature and background, it's probable that I will always be the one who watches the other person walk away. That's not a fun realization. But it's reality. I can live with reality.
However, it's important to me that I am honest, and in my blog is where I put the uncomfortable truths that many people (including myself) do not wish to hear me speak. So I am writing this with the caveat that at any time I might rescind the words.
I understand.
I know why relationships wax/wane/disappear.
I don't have a lot to say about this, except it doesn't make me want to scream anymore. I think the most important thing is that I'm okay with the system and it's all right if people maintain shoestring relationships, meet intermittently, and feel happy about their interaction. People weren't meant to be integral parts of the lives of lots of people. Children grow up and leave, friends find other friends, sometimes married people choose to divorce and marry other people. That's just life.
I think I believed there was something about people not staying that said something about me--I wasn't good enough, or entertaining enough, or loving enough, or maybe, just not enough at all. It doesn't, though. The process of moving through people doesn't really say anything about me at all, except that maybe I'm human, too.
There are still people I want to have in my life. I would choose them daily. But I'm no longer terrified that I'll watch them move away from me and wonder why. And if they do, I'm pretty sure I'll be okay with letting them decide how frequently they contact me.
My stress about this came, I believe, because I allowed myself to have close relationships with people other than Darrin. I had never done that before. I told people things about me; I shared my loves and peeves and joys and sorrows. And then I became afraid that I had shared a part of me that would be discarded or mocked, or that I assumed someone would care when really they were just mildly curious. Yes, this is a reflection of my childhood.
But I think what has happened is that I'm recognizing that what I have to give has value, if only to me. It's up to the recipient what happens next. And if what I've given is disregarded or belittled, that's not my problem. I chose unwisely and I can learn from my mistakes.
I think there are lots of people who love other people in varying degrees. Their interest in those people has longevity based on the depth and reciprocation of that love. People are complicated. Lives can be complicated. Sometimes things like stress, or family problems, or physical/mental illness cause rifts that can't be bridged. It's a loss we mourn and then move forward. It seems to be the only healthy way to interact with people because no one wants to stay in a relationship because they feel threatened or compelled to do so. They want to be there because the person makes their lives feel better in many different ways.
That's all, I guess. I understand. Finally.
But just so you know, I still don't like it. I also understand that because of my nature and background, it's probable that I will always be the one who watches the other person walk away. That's not a fun realization. But it's reality. I can live with reality.
Friday, November 29, 2013
"I would maintain that thanks are the highest form of thought, and that gratitude is happiness doubled by wonder." ~Gilbert Keith Chesterton
I bowed to my Inner Selfish yesterday.
Thanksgiving brings a host of mixed feelings for me. I have good childhood memories of Thanksgiving. Each year was spent with my favorite cousin, Jeff, and his family. I felt, at those times, that I had an ally, a friend, someone a little bit like me who understood my whims and ideas and feelings. For three days I had a haven with a person I loved who loved me back--and no abuse from my mother. She was even kind on those days. Jeff and I avoided our mothers (and all adults), and it was nice to be able to relax with someone.
On the other hand, I hate Thanksgiving dinner. I always have. I'm not fond of meat, in general, so a meal dominated by a huge bird does not appeal to me. Jeff, who loves turkey, used to insist that I liked it, too, sliding extra helpings on my plate and covering the meat with cranberry sauce and giblet gravy. I hate giblets. I would eat a little of the potatoes (not a huge fan of those, either), search in vain for salad not made with Jello or some sort of whipped topping, and leave the table as soon as I was able, spurning the pies of a dozen flavors (I also am not fond of pie), and seek out an orange or apple that was bound to be in the kitchen somewhere. I still hate Thanksgiving dinner.
Jeff and I were of one heart when it came to large crowds. Thanksgiving always brought large crowds. Jeff would find a hiding place for us, and we would stay there playing video games, reading comic books, or playing Uno. Sometimes, if we were feeling sociable, we would join our older siblings in a game of Monopoly. I still have difficulty with large crowds.
So this year, Darrin volunteered to help with a community Thanksgiving event, and DJ had to do a stint on the ambulance for his EMT class, and Adam was working in the morning, and Tabitha had the stomach flu the night before and was finally sleeping--so I went to a place where I could be alone, and I spent time with me. An evening Thanksgiving dinner was scheduled with my parents. I stayed alone for about seven hours. I read, played stupid Facebook games, practiced a piece I've been memorizing, sang songs I love, went for a walk, and stared out my window for an hour. I didn't make the traditional Thanksgiving phone calls to Darrin's family or my sisters--nor did I answer phone calls. I ignored texts (except for the one from Blueyedane, because I love him and he doesn't make me feel like I'm invisible) and I sent none.
And I chose no one to receive my annual Thanksgiving email. Each year since I've had access to email, I've chosen someone I care about deeply and I've sent them a note on Thanksgiving. I've told them why they make my life better and expressed my love and gratitude for them. I love this part of Thanksgiving.
This year I just didn't want to. Maybe I'm ungrateful? Maybe I no longer love as deeply? Maybe I care more about the Thanksgiving email than the recipient does? Because I'm pretty certain that no one really wonders if I love them or am grateful for them, so it might come as a nice surprise, but there is no way anyone feels as profoundly about receiving that email as I have felt about writing it. Except this year I didn't feel anything.
At 3:00 I checked the turkey and started peeling potatoes. Adam insisted we do all fifteen pounds which turned out to be about ten pounds too many. Then I made candied sweet potatoes (and some plain ones for Grandma and me). I chopped onions and celery for stuffing and had Adam deliver them to my mom's house. At 4:30, my mom called to tell me she had rescheduled dinner for 6:00. I looked at the almost cooked turkey and told her it was a mistake, at which point she confessed that she hadn't even begun making rolls or stuffing and she was still making pies. I reminded her that we were only cooking for nine people. She ignored me.
So the turkey was dry and nasty, the stuffing underdone, the rolls were sort of horrid, the marshmallows had sunk to the bottom of the candied yams, and we had way too many mashed potatoes. Darrin said dinner was marvelous. Adam and DJ thought it was fine. The other guests took large quantities of leftovers home with them. Darrin says I am Thanksgiving Scrooge. He's right.
This morning, as I watched the sun rise, I realized that if I had to do my day over again, I would do the same thing. There is something about my alone time that I crave deeply right now. But I sort of regret not writing my Thanksgiving email. So today, I'm writing one--to me.
Dear Sam,
You're pretty hard on yourself a lot of the time. You always believe you can handle the stress and sadness that creep into your life with more grace and dignity. You wish you were better at friendship and parenting and playing music and cooking and keeping house and loving people. You want to live life with more joy and see more that is beautiful, but sometimes the ugly and sad are overwhelming and you're not as good at life as you want to be.
But today, the day after Thanksgiving, I'm choosing you as the recipient of my gratitude email. Because I think sometimes you should be thanked for the things you do--things no one notices and sometimes you only notice after a long time has passed and you finally recognize what you've done.
Thank you for not giving up. There have been so many times when you've wanted to and life has been really painful. But you continued, not always very gracefully, but with as much determination as you could muster, and you're here today--and that's a good thing because if you weren't you would have missed the sunrise this morning and it was breathtaking.
Thank you for trying to learn about people and relationships. It's really hard--probably for everyone in the world. You've had some wonderful moments and made beautiful memories as you've worked on allowing people to know more about you and spend time in your life.
Thank you for giving stupid gifts to people. You learned a great deal about yourself, and some of those giving times were really helpful as you worked on integration. I'm guessing the recipients wondered why you were giving them things, but it's not really important. They can work on dealing with their feelings about it on their own time. You needed to do it, and it wasn't easy because some of those gifts exposed you to vulnerability and allowed others to gain knowledge about who you are and the things you love. For you, that takes a great deal of courage. But what you gained in the process was invaluable and probably indescribable. Thank you for doing it even though it was difficult.
Thank you for forgiving the people who have harmed you. The angry times were important. The sad times were more important. The lonely times were horrible, but probably also important. Now that the rancor and bitterness have passed, you will always understand that what was done to you was wrong and should never have happened, but you have chosen to be someone who will find joy and beauty. I'm happy that you chose that. Your life will be better and you will eventually replace the ugliness of your experiences with the beauty of your choices.
Thank you for getting help when you needed it. Not everyone can do that. It takes strength and a willingness to look at what is hurting when one wishes to heal. The healing is still happening and seems to be taking an eternity. But part of that is because you're still deciding who you are. One day you'll know--and I think you'll like her...no...I think you'll love her.
Thank you for taking time to care for your physical needs--for getting a mammogram and a physical even though those things are really horrifying to you and trigger memories you'd like to forget. But you did it because you understand you are at risk for breast cancer and you need to take care of yourself. That's a really good thing and I'm glad you did it.
Thank you for getting up every morning and smiling because you're happy. Thank you for recognizing you're happy even when life is really hard.
Thank you for being me.
Love,
Sam
Thursday, November 28, 2013
Happy Thanksgiving
I thank Thee, dear Lord, for the blue of the skies,

For the green of the woods and fields,
For the river that ripples and sparkles by,

For the harvest the brown earth yields,

For the birds that sing

and the flowers that bloom,

For the breath of the cooling breeze.
Thou hast made them all so beautiful,
I thank Thee, Dear Lord, for these.

Wednesday, November 27, 2013
The huge bout of PTSD symptoms has gone. As is normal, I feel rather drained and exhausted emotionally. Therapist believes that one of the reasons the occurrences lately are more intense and enduring, is because I'm learning to manage the symptoms--I'm allowing them to happen so I can learn to cope better. I have no idea if he's right, but a similar thing happened before the flashbacks stopped a few years ago.
When the PTSD symptoms leave I feel spent. I have no desire to talk with or spend time with people. Practicing several hours daily, working out at the gym, and working online are endlessly appealing. Then I panic because I have a terrifying memory of my uncle, floating off the coast of Florida in a tiny boat because that's where he could be completely alone. He would tell no one he was leaving or where he was going and we would only learn that he was "boating" when he arrived back home. I don't want to be my uncle. He is now almost completely anti-social, paranoid, and alone.
When the emptiness hits and the desire for complete solitude overwhelms me, I find myself ignoring the phone, emails...sometimes I chat with people but only if they hail me first. Then I wonder how long will they will continue seeking me out if I don't reciprocate, so I hastily return emails and phone calls and try to reach out to people on Facebook or online--but it's a rather huge effort, and so I remain emotionally exhausted and trying to remember why I'm doing those things.
Therapist says to just keep doing them. I often wonder if it feels easy for him to say that to me when he, himself, has never experienced the things I talk about, but I trust him, warranted or not, because I do not want to become my uncle, or my sister's friend who committed suicide, or the people I chat with at night in the PTSD chat rooms--people who live alone because it's too stressful to have a spouse or children, but they miss those people like crazy. I don't want that.
We've been having typically fluctuating weather. It's not unusual for November to have a snowstorm and below zero weather one day, and be in the forties or fifties the next. Our birds are silent in the cold. I've been missing them, as the past few days have been frigid. Yesterday it warmed a bit. Today is gorgeous and the winter birds are talking outside my window. It's lovely.
The warmer weather helps me, as well as the abundance of sunshine. I'm less likely to hibernate in my house and ignore all humanity on days like today. Still, when I talk to people, I don't always know what to say and I don't always want to talk. It has nothing to do with the person, who is wonderful, and everything to do with not being able to understand why they're in my life in the first place. I used to believe this feeling came from lack of self-worth, but that's not the case. It truly is completely baffling to me. I'm a workaholic. I love obscure poetry and literature. I take calculus classes when I think no one is looking. I'm a little obsessed with making food that is colorful and tastes amazing. I think almost everything in the world (including spiders and snakes) is beautiful in its own way. I'm a complete music nerd. If allowed, I would talk about music history and piano pedagogy nonstop--probably for days. I'm not particularly fascinating or beautiful or young, so I often wonder why people are interested in me at all. I seem, to me, humdrum at best and completely odd at worst.
Therapist says that phrase describes most everyone in the world. Perhaps we're all birds of a feather?
When the PTSD symptoms leave I feel spent. I have no desire to talk with or spend time with people. Practicing several hours daily, working out at the gym, and working online are endlessly appealing. Then I panic because I have a terrifying memory of my uncle, floating off the coast of Florida in a tiny boat because that's where he could be completely alone. He would tell no one he was leaving or where he was going and we would only learn that he was "boating" when he arrived back home. I don't want to be my uncle. He is now almost completely anti-social, paranoid, and alone.
When the emptiness hits and the desire for complete solitude overwhelms me, I find myself ignoring the phone, emails...sometimes I chat with people but only if they hail me first. Then I wonder how long will they will continue seeking me out if I don't reciprocate, so I hastily return emails and phone calls and try to reach out to people on Facebook or online--but it's a rather huge effort, and so I remain emotionally exhausted and trying to remember why I'm doing those things.
Therapist says to just keep doing them. I often wonder if it feels easy for him to say that to me when he, himself, has never experienced the things I talk about, but I trust him, warranted or not, because I do not want to become my uncle, or my sister's friend who committed suicide, or the people I chat with at night in the PTSD chat rooms--people who live alone because it's too stressful to have a spouse or children, but they miss those people like crazy. I don't want that.
We've been having typically fluctuating weather. It's not unusual for November to have a snowstorm and below zero weather one day, and be in the forties or fifties the next. Our birds are silent in the cold. I've been missing them, as the past few days have been frigid. Yesterday it warmed a bit. Today is gorgeous and the winter birds are talking outside my window. It's lovely.
The warmer weather helps me, as well as the abundance of sunshine. I'm less likely to hibernate in my house and ignore all humanity on days like today. Still, when I talk to people, I don't always know what to say and I don't always want to talk. It has nothing to do with the person, who is wonderful, and everything to do with not being able to understand why they're in my life in the first place. I used to believe this feeling came from lack of self-worth, but that's not the case. It truly is completely baffling to me. I'm a workaholic. I love obscure poetry and literature. I take calculus classes when I think no one is looking. I'm a little obsessed with making food that is colorful and tastes amazing. I think almost everything in the world (including spiders and snakes) is beautiful in its own way. I'm a complete music nerd. If allowed, I would talk about music history and piano pedagogy nonstop--probably for days. I'm not particularly fascinating or beautiful or young, so I often wonder why people are interested in me at all. I seem, to me, humdrum at best and completely odd at worst.
Therapist says that phrase describes most everyone in the world. Perhaps we're all birds of a feather?
Sunday, November 10, 2013
If you can make sense of this post, I have a gold star you can wear on your forehead.
I know two women who were friends for nearly 25 years. They lived near each other and spent a great deal of time together for the first eight of those years, then one moved far away. After the move, they called each other a few times weekly and spent time talking while they cleaned or prepared dinner, sharing minute details of their daily lives and missing each other. Sometimes one would fly to the other's home so they could be together for a week or two. They came away from those visits rejuvenated and happy.
Then one day the relationship stopped. I don't know the details. I just know the phone calls ceased and the visits ended and nearly a decade has passed without the two friends sharing a word or a moment. They simply are not part of each other's lives anymore.
I don't know how this happens. I don't understand how people can move from closeness and intimacy to nonexistence. Probably that sounds weird, coming from me, because I've been known to disappear from people's lives fairly regularly, but the difference is, I never allowed myself to feel closeness. There may have been close moments, or briefly shared intimacy, but I would not allow those things to become more than just tiny moments, nor would I allow those moments to deepen or form lasting relationships.
I've done that now. I have more than one relationship I feel has depth and longevity--relationships in which I invest love and time, and I not only allow the closeness to happen, I often seek it. And now that I've experienced what that feels like, I don't understand how close relationships wane or end. At all.
I actually believed that when I allowed myself to experience relationships, I would then understand the fleeting nature of human sociality. I thought I'd know how it happens that people allow life moments to replace interaction with loved ones. I thought I'd get it. But I don't. The longer my close relationships last, the more I am baffled by the account of the two women which began this blog post. If this was just one account, I'd simply believe they were unusual, or the relationship became unhealthy, but I know of several such stories. People who were close for a very long time, and then they weren't.
I'm thinking about this today because for the past three years I've felt very large changes happening to my emotional self. I'm allowing myself some leeway because I've been asked to endure unusual emotional trauma during that time, but as I heal, as I regain my stamina, I find myself changed.
I don't yearn for closeness as I once did. In fact, I feel a great deal of antagonism when others seek closeness from me, and when I feel a tug toward any other person, that antagonism boomerangs back and I feel it toward myself. Tolkien Boy has more than once told me that my emotional self is maturing, insinuating that it was stunted in my childhood and youth because I was not allowed to express emotions and love words from me were mocked or ignored. I can't discount this opinion, partly because Tolkien Boy knows me fairly well, and partly because it's a logical conclusion based on my weird, rather horrifying past.
However, I would not classify my feelings for Darrin and my children as immature and while certain aspects of my feelings for others might be, I don't know that that stems from a need for growth, but rather, I believe it to be a side effect of learning to live with people while dealing with PTSD--not an easy task and one which many people who experience PTSD avoid. Allowing people to remain in my life while dealing with the symptoms of PTSD is one of the most difficult things I've ever done. It remains difficult. I keep doing it. For whatever reason, my heart and soul believe it to be important, regardless of the effort it requires.
I try to make certain that my struggle in this area doesn't scare people away. I spoke to Tolkien Boy on the phone about 10 days ago. The day had been awful. I think I cried through most of it. I was overwhelmed and angry and sad and nauseated. I felt like a complete failure and sort of hated myself. I finally let Tolkien Boy know I was having a difficult day and asked if I could call (because that's what Therapist says I should do). When we spoke, he said, "You don't sound like you're falling apart. You sound like you're doing well." I believe I made some comment about that being my tragedy--I always sound like everything's okay. It's practiced. It's what I was taught. Never let anyone know you're dying inside. That's not allowed. Forget that you're hurting and make sure you send the other person away with a smile and a laugh. Supposedly that will make you both live happily ever after.
I know it doesn't work. I leave conversations feeling glad that I brightened someone's day, and wishing I knew what to do to lighten my own load. I know all that stuff about doing service for others when you're feeling low and supposedly that will make your day wonderful, but thus far, in my life, that has not been the case. I feel grateful and blessed when I serve others. I feel glad if I can make their day happier, but I still struggle with panic and anxiety and often, depression.
It's my attitude, right?
Anyone who really knows me, knows that I work very hard to remain positive even while being realistic. I don't wallow often. I try to do good things. It's not like I'm seeking to be overwhelmed by symptoms of PTSD or loneliness or sadness. And I try not to spread it around. I really do want the people I love to feel valued and joyful when they're with me.
I'm not sure, really, what I'm trying to say here. Maybe that I'm feeling the changes happening inside me and I'm getting tired of always trying. I'm feeling stressed when it seems the only time people want to be with me is when they need my help or reassurance. Sometimes I want to be sought out because I'm Samantha and I'm missed. Sometimes I want people to enjoy my company just because I'm delightful. Sometimes I want to be the person thought of first when something funny or happy or newsworthy or mundane or odd just needs to be shared.
I don't know that I'm "maturing", as Tolkien Boy has expressed. I think I'm just getting fed up with PTSD and probably with relationships and people, as well. That sort of sounds the opposite of mature--and it definitely feels anything BUT mature.
Darrin says I feel this way because I don't allow people to fill my needs. I interrupt them and try to fill theirs instead. He says I'm afraid if I accept nurturing or love, I'll "owe" something. Maybe he's right?
All I know is this: the antagonism rears its ugly head at the most inopportune times, and has me questioning the worth of every relationship in my life right now. And that's unfair to my counterparts in those relationships. And I don't know what to do about it.
PTSD sucks.
That's all.
Then one day the relationship stopped. I don't know the details. I just know the phone calls ceased and the visits ended and nearly a decade has passed without the two friends sharing a word or a moment. They simply are not part of each other's lives anymore.
I don't know how this happens. I don't understand how people can move from closeness and intimacy to nonexistence. Probably that sounds weird, coming from me, because I've been known to disappear from people's lives fairly regularly, but the difference is, I never allowed myself to feel closeness. There may have been close moments, or briefly shared intimacy, but I would not allow those things to become more than just tiny moments, nor would I allow those moments to deepen or form lasting relationships.
I've done that now. I have more than one relationship I feel has depth and longevity--relationships in which I invest love and time, and I not only allow the closeness to happen, I often seek it. And now that I've experienced what that feels like, I don't understand how close relationships wane or end. At all.
I actually believed that when I allowed myself to experience relationships, I would then understand the fleeting nature of human sociality. I thought I'd know how it happens that people allow life moments to replace interaction with loved ones. I thought I'd get it. But I don't. The longer my close relationships last, the more I am baffled by the account of the two women which began this blog post. If this was just one account, I'd simply believe they were unusual, or the relationship became unhealthy, but I know of several such stories. People who were close for a very long time, and then they weren't.
I'm thinking about this today because for the past three years I've felt very large changes happening to my emotional self. I'm allowing myself some leeway because I've been asked to endure unusual emotional trauma during that time, but as I heal, as I regain my stamina, I find myself changed.
I don't yearn for closeness as I once did. In fact, I feel a great deal of antagonism when others seek closeness from me, and when I feel a tug toward any other person, that antagonism boomerangs back and I feel it toward myself. Tolkien Boy has more than once told me that my emotional self is maturing, insinuating that it was stunted in my childhood and youth because I was not allowed to express emotions and love words from me were mocked or ignored. I can't discount this opinion, partly because Tolkien Boy knows me fairly well, and partly because it's a logical conclusion based on my weird, rather horrifying past.
However, I would not classify my feelings for Darrin and my children as immature and while certain aspects of my feelings for others might be, I don't know that that stems from a need for growth, but rather, I believe it to be a side effect of learning to live with people while dealing with PTSD--not an easy task and one which many people who experience PTSD avoid. Allowing people to remain in my life while dealing with the symptoms of PTSD is one of the most difficult things I've ever done. It remains difficult. I keep doing it. For whatever reason, my heart and soul believe it to be important, regardless of the effort it requires.
I try to make certain that my struggle in this area doesn't scare people away. I spoke to Tolkien Boy on the phone about 10 days ago. The day had been awful. I think I cried through most of it. I was overwhelmed and angry and sad and nauseated. I felt like a complete failure and sort of hated myself. I finally let Tolkien Boy know I was having a difficult day and asked if I could call (because that's what Therapist says I should do). When we spoke, he said, "You don't sound like you're falling apart. You sound like you're doing well." I believe I made some comment about that being my tragedy--I always sound like everything's okay. It's practiced. It's what I was taught. Never let anyone know you're dying inside. That's not allowed. Forget that you're hurting and make sure you send the other person away with a smile and a laugh. Supposedly that will make you both live happily ever after.
I know it doesn't work. I leave conversations feeling glad that I brightened someone's day, and wishing I knew what to do to lighten my own load. I know all that stuff about doing service for others when you're feeling low and supposedly that will make your day wonderful, but thus far, in my life, that has not been the case. I feel grateful and blessed when I serve others. I feel glad if I can make their day happier, but I still struggle with panic and anxiety and often, depression.
It's my attitude, right?
Anyone who really knows me, knows that I work very hard to remain positive even while being realistic. I don't wallow often. I try to do good things. It's not like I'm seeking to be overwhelmed by symptoms of PTSD or loneliness or sadness. And I try not to spread it around. I really do want the people I love to feel valued and joyful when they're with me.
I'm not sure, really, what I'm trying to say here. Maybe that I'm feeling the changes happening inside me and I'm getting tired of always trying. I'm feeling stressed when it seems the only time people want to be with me is when they need my help or reassurance. Sometimes I want to be sought out because I'm Samantha and I'm missed. Sometimes I want people to enjoy my company just because I'm delightful. Sometimes I want to be the person thought of first when something funny or happy or newsworthy or mundane or odd just needs to be shared.
I don't know that I'm "maturing", as Tolkien Boy has expressed. I think I'm just getting fed up with PTSD and probably with relationships and people, as well. That sort of sounds the opposite of mature--and it definitely feels anything BUT mature.
Darrin says I feel this way because I don't allow people to fill my needs. I interrupt them and try to fill theirs instead. He says I'm afraid if I accept nurturing or love, I'll "owe" something. Maybe he's right?
All I know is this: the antagonism rears its ugly head at the most inopportune times, and has me questioning the worth of every relationship in my life right now. And that's unfair to my counterparts in those relationships. And I don't know what to do about it.
PTSD sucks.
That's all.
Thursday, November 7, 2013
Stressed, Tired, and Stumped
Last Saturday I attended the funeral of a friend. This required me to return to the place where I grew up and to meet with people of my childhood. While at the funeral, I was told some things about myself that are causing me some stress because until now I have had no memory of them. After we talked, my memories have been triggered and now I can't stop remembering. I sort of hate this part of me--this ability to suppress memory until it no longer exists for me, only to be haunted by its return.
So I'm not myself once again. Small things cause me panic; things I've done daily for years. Being online makes me feel completely unsafe. Chatting with people I know and love causes fear that is overwhelming. Being in rehearsal, teaching classes and private students, working online--all the things that make up my day--are giving me panic attacks that are difficult to manage.
I know what I'm supposed to do. Therapist and I have worked on this for years. I'm just not good at it yet.
Discovering memories, the existence of which I had completely forgotten, adds one more "thing" I have to process. I was the person in those memories. I did those things. I was in that place. I knew those people. So why did I forget? Why was I not strong enough to just cope with the moment and move on, allowing the event to be written in my history and continuing to live my life? Why did I feel that particular part of me needed to be erased?
For me this is is distressing to the point that I've not slept for a few days, and I've only been able to talk about it with one person--and now I feel guilty for talking about it with him. He is facing a number of large changes in the next couple of months that will completely remodel his current life. He doesn't need to hear about my trivia. Sometimes I forget that my life just isn't that amazing and I don't need to talk about it.
Still, when 4 a.m. rolled around this morning and I realized I hadn't slept--again--I started wondering how long I can go without sleep. I've had about three hours total in te past four nights and I'm starting to feel ill and paranoid. And I know, on the scale of Really Bad Problems, this is pretty trivial, but I don't really know what to do next. I could talk to Therapist, but I'm pretty sure he'll tell me to live in the moment, make cookies, talk to a friend, do something soothing...all very good suggestions, each of which is highly likely to send me into a panic attack from which I'm pretty sure I won't recover. Did I mention I was feeling paranoid?
Okay--I'm going to grade assignments. It has to be done, right?
So I'm not myself once again. Small things cause me panic; things I've done daily for years. Being online makes me feel completely unsafe. Chatting with people I know and love causes fear that is overwhelming. Being in rehearsal, teaching classes and private students, working online--all the things that make up my day--are giving me panic attacks that are difficult to manage.
I know what I'm supposed to do. Therapist and I have worked on this for years. I'm just not good at it yet.
Discovering memories, the existence of which I had completely forgotten, adds one more "thing" I have to process. I was the person in those memories. I did those things. I was in that place. I knew those people. So why did I forget? Why was I not strong enough to just cope with the moment and move on, allowing the event to be written in my history and continuing to live my life? Why did I feel that particular part of me needed to be erased?
For me this is is distressing to the point that I've not slept for a few days, and I've only been able to talk about it with one person--and now I feel guilty for talking about it with him. He is facing a number of large changes in the next couple of months that will completely remodel his current life. He doesn't need to hear about my trivia. Sometimes I forget that my life just isn't that amazing and I don't need to talk about it.
Still, when 4 a.m. rolled around this morning and I realized I hadn't slept--again--I started wondering how long I can go without sleep. I've had about three hours total in te past four nights and I'm starting to feel ill and paranoid. And I know, on the scale of Really Bad Problems, this is pretty trivial, but I don't really know what to do next. I could talk to Therapist, but I'm pretty sure he'll tell me to live in the moment, make cookies, talk to a friend, do something soothing...all very good suggestions, each of which is highly likely to send me into a panic attack from which I'm pretty sure I won't recover. Did I mention I was feeling paranoid?
Okay--I'm going to grade assignments. It has to be done, right?
Monday, November 4, 2013
A very short post
I went out of town for a few days. I wrote a post while I was gone--away from online access, for the most part--little telephone access--but I don't feel like publishing it right now.
Today my heart is crying a little bit for many reasons, most of which have to do with things I cannot change but wish were different.
That's all.
Today my heart is crying a little bit for many reasons, most of which have to do with things I cannot change but wish were different.
That's all.
Tuesday, October 22, 2013
Crying "Uncle" is not an option.
I am running once again. Real running.
My amazing fall down a steep, rocky hill, which managed to bloody nearly every part of my body and tear the cartilage from my hip, happened about three years ago. Following surgery and physical therapy, I attempted running again. Three months later I had tendonitis in my iliopsoas tendon. If you're not familiar with that anatomical part, it's the tendon that stretches through the abdomen and into the groin. It's used when the leg is lifted and turned sideways and when one walks or does any other movement. In short--it hurts like crazy most of the time.
This was complicated by my muscles going into severe spasms which would put stress on the inflamed tendon and on my knee. Translation: "hurts like crazy" became indescribable pain. Because I also have systemic hypermobility (which means my joints are more flexible than normal and it's not unusual for me to have a partial dislocation at the most inopportune times), my hips began to tilt, the ball moved out of the socket, and it was typical for me to be walking normally, only to start limping or even be unable to move with no warning. Needless to say, running was out of the question.
I continued elliptical training to maintain my cardiovascular fitness, but there seemed to be no light at the end of the tunnel. Sitting was painful. Standing was painful. Walking was painful. Sleeping was painful. I began to forget what it felt like to not be in pain. I still cannot remember because I'm still in pain much of the time.
Pain is an interesting phenomenon. Chronic pain is something one cannot understand without experiencing it. It gnaws and nags and wears one down until it seems to be the focus of every part of life. For me, it brings depression and robs me of my ability to successfully manage PTSD. I forget who I am. I can't remember how to interact with people and, more importantly, why I'm doing so in the first place. When the pain becomes unmanageable, I find myself emotionless and disinterested in anyone or anything.
A month ago I ceased all physical activity. Within three days my tendon was less inflamed. I felt a very low level of pain and was walking normally. This lasted a week. Then the tendon began to tighten. The strain on my knee became nauseating. My muscles began to knot and spasm again. My hip began popping and cracking whenever I tried to move or support any weight with it. Finally, last week, I made the decision to return to a workout regime and stick with it until it crippled me or until I regained the strength necessary to deal with the tendonitis.
So I'm currently in that process. I start with fifteen minutes of weight-lifting and strengthening exercises, then I move the a stationary bike for another 15-20 minutes, followed by a 10 minute run (yes, I'm seriously curtailing my desire to run more), and a 10 minute swim. I am NOT a good swimmer, but I'm starting to not hate it. I follow this with a soak in a jacuzzi where I try to work out knots and do some stretching.
I'm feeling the strength returning this week. Last week was horrible. I was exhausted and hurting and miserable. We'll see what next week brings.
This is my last-ditch effort to try to help my body work again. It's coupled with enormous amounts of water and anything with potassium. I have a potassium deficiency which is why my muscle spasms are sort of out of control. I take a supplement and drink coconut water and eat potassium rich foods which seems to make the spasms less severe. If this works, I'll be running as I used to by March 2014. If it doesn't, there is another surgery waiting for me. We might have to see how I weather a tendon release. I hope not, but I'm keeping it on my list of options, just in case.
In the meantime, if I seem moody or cranky or just plain obnoxious, I would ask you to reach into your groin, locate the large tendon that resides there, grab it and twist it for about five minutes--then monitor your behavior following that experience. It might help you understand where I'm coming from.
But the main point of this post is that I'm running. It's not easy, it doesn't feel great, but I'm doing it.
My amazing fall down a steep, rocky hill, which managed to bloody nearly every part of my body and tear the cartilage from my hip, happened about three years ago. Following surgery and physical therapy, I attempted running again. Three months later I had tendonitis in my iliopsoas tendon. If you're not familiar with that anatomical part, it's the tendon that stretches through the abdomen and into the groin. It's used when the leg is lifted and turned sideways and when one walks or does any other movement. In short--it hurts like crazy most of the time.
This was complicated by my muscles going into severe spasms which would put stress on the inflamed tendon and on my knee. Translation: "hurts like crazy" became indescribable pain. Because I also have systemic hypermobility (which means my joints are more flexible than normal and it's not unusual for me to have a partial dislocation at the most inopportune times), my hips began to tilt, the ball moved out of the socket, and it was typical for me to be walking normally, only to start limping or even be unable to move with no warning. Needless to say, running was out of the question.
I continued elliptical training to maintain my cardiovascular fitness, but there seemed to be no light at the end of the tunnel. Sitting was painful. Standing was painful. Walking was painful. Sleeping was painful. I began to forget what it felt like to not be in pain. I still cannot remember because I'm still in pain much of the time.
Pain is an interesting phenomenon. Chronic pain is something one cannot understand without experiencing it. It gnaws and nags and wears one down until it seems to be the focus of every part of life. For me, it brings depression and robs me of my ability to successfully manage PTSD. I forget who I am. I can't remember how to interact with people and, more importantly, why I'm doing so in the first place. When the pain becomes unmanageable, I find myself emotionless and disinterested in anyone or anything.
A month ago I ceased all physical activity. Within three days my tendon was less inflamed. I felt a very low level of pain and was walking normally. This lasted a week. Then the tendon began to tighten. The strain on my knee became nauseating. My muscles began to knot and spasm again. My hip began popping and cracking whenever I tried to move or support any weight with it. Finally, last week, I made the decision to return to a workout regime and stick with it until it crippled me or until I regained the strength necessary to deal with the tendonitis.
So I'm currently in that process. I start with fifteen minutes of weight-lifting and strengthening exercises, then I move the a stationary bike for another 15-20 minutes, followed by a 10 minute run (yes, I'm seriously curtailing my desire to run more), and a 10 minute swim. I am NOT a good swimmer, but I'm starting to not hate it. I follow this with a soak in a jacuzzi where I try to work out knots and do some stretching.
I'm feeling the strength returning this week. Last week was horrible. I was exhausted and hurting and miserable. We'll see what next week brings.
This is my last-ditch effort to try to help my body work again. It's coupled with enormous amounts of water and anything with potassium. I have a potassium deficiency which is why my muscle spasms are sort of out of control. I take a supplement and drink coconut water and eat potassium rich foods which seems to make the spasms less severe. If this works, I'll be running as I used to by March 2014. If it doesn't, there is another surgery waiting for me. We might have to see how I weather a tendon release. I hope not, but I'm keeping it on my list of options, just in case.
In the meantime, if I seem moody or cranky or just plain obnoxious, I would ask you to reach into your groin, locate the large tendon that resides there, grab it and twist it for about five minutes--then monitor your behavior following that experience. It might help you understand where I'm coming from.
But the main point of this post is that I'm running. It's not easy, it doesn't feel great, but I'm doing it.
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